Sickle Cell Warriors

Tag "About Sickle Cell"

    7th Annual Sickle Cell Disease Therapeutics Conference

7th Annual Sickle Cell Disease Therapeutics Conference

The 7th Sickle Cell Disease Therapeutics Conference is a forum to discover the latest advancements and future trends impacting the sickle cell community.  Conference attendees will hear from innovative industry leaders, patients, physicians, community based organizations and biotech companies. For more information about the conference, email scdconference@gmail.com Registration is required. Click

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    2018 SCD Seminar & Hotel Registration

2018 SCD Seminar & Hotel Registration

Reserve Your Hotel Room Today! All SCD Warriors who register before August 15th are guaranteed a bed at the fabulous Courtyard by Marriott! That means, for $25 the SCD Warrior gets: A bus ride to Sacramento from one of 5 routes To stay four nights at one of the best

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    GBT’s Phase 3 HOPE study Results

GBT’s Phase 3 HOPE study Results

GBT Announces Positive Top-line Data from Part A of the Phase 3 HOPE Study of Voxelotor in Sickle Cell Disease Primary Endpoint Achieved; 58 Percent of Patients on Voxelotor Dosed with 1500 mg at Week 12 Exceeded 1 g/dL Increase in Hemoglobin Versus 9 Percent of Placebo (p<0.0001) Company Met

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    Sickle Cell Patient & Family Educational Symposium

Sickle Cell Patient & Family Educational Symposium

The Annual Sickle Cell Disease Patient & Family Educational Symposium is the only national sickle cell convention designed, created and hosted by the sickle cell patient and family community.  Now in its fifth year, the meeting has grown in size and scope. Each year the meeting is hosted by a

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    Tomorrow, June 19, is World Sickle Cell Day!

Tomorrow, June 19, is World Sickle Cell Day!

On World Sickle Cell Day, Sickle Cell Warriors Takes Action to Improve Global Health Outcomes Sickle Cell Warriors, with the American Society of Hematology and other Sickle Cell Disease Coalition partners, debuts a public service announcement and global resources library to help improve newborn screening and early care for children

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    Public Meeting for Patient-Focused Drug Development on Chronic Pain

Public Meeting for Patient-Focused Drug Development on Chronic Pain

Public Meeting for Patient-Focused Drug Development on Chronic Pain Meeting Information On July 9, 2018, FDA is hosting a public meeting on Patient-Focused Drug Development for Chronic Pain. FDA is interested in hearing patients’ perspectives on chronic pain, views on treatment approaches, and challenges or barriers to accessing treatments for

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    SCD Adult Support Groups in Southern California

SCD Adult Support Groups in Southern California

California Warriors, great news! Cayenne Wellness is now hosting monthly support group meetings in Fresno, San Diego, Los Angles, Loma Linda, and Antelope Valley. You get to meet others with SCD and get valuable info about improving your health. You also gain an understanding how others cope with SCD, share

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    Sickle Cell Spoken Word Poetry

Sickle Cell Spoken Word Poetry

Spoken word is an oral art that melds together words and phrases in beautiful patterns that are punctuated by intonation and undulation.  Take a moment to hear this amazing spoken word poet shine a light on the world of sickle cell.  We hope you are as moved as we were!

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    Tracing sickle cell back to one child, 7,300 years ago

Tracing sickle cell back to one child, 7,300 years ago

Tracing sickle cell back to one child, 7,300 years ago Check out this amazing article by Nalina Eggert of BBC News for a journey of SCD from 7,300 years ago.  The article contains videos and text that will provide a new perspective for how SCD developed and continues to influence the

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    5th Annual Lowcountry Sickle Cell Disease Symposium

5th Annual Lowcountry Sickle Cell Disease Symposium

5th Annual Lowcountry Sickle Cell Disease Symposium Therapeutic Options in Sickle Cell Disease Saturday, April 28, 2018 MUSC Drug Discovery Building 97 Jonathan Lucas Street Charleston, SC   Conference Description Sickle Cell Disease is the most common inherited blood disorder. Due to improvements in childhood care, many more patients are living

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    Meet Brittany: Caregiver, poet, and writer

Meet Brittany: Caregiver, poet, and writer

This week’s warrior in the spotlight is Brittany Hightower.  Brittany is a caregiver who is beautiful, intelligent, and passionate about poetry. And oh yeah, she has sickle cell. How old where you when you found out you had sickle cell?    I was diagnosed at birth. How were you able

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    How to Travel Safely with Sickle Cell April Farrell-Hasty

How to Travel Safely with Sickle Cell April Farrell-Hasty

I write this as many warriors will be traveling soon. I have traveled extensively and frequently as a yoga teacher trainer that teaches at yoga retreats in exotic destinations. Here is what I have learned. Always see your doctor before you travel.  There are many reasons for this. First, you

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    Sickle Cell and Endari

Sickle Cell and Endari

**Due to a production issue Endari is not currently available, but as soon as becomes available we will post it up on the website. Hello everyone, great news! Endari is available as of December 17. Endari is a concentrated form of L-Glutamine specially formulated for sickle cell disease. When taken

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    Sickle Cell Disease Handbook by APHON

Sickle Cell Disease Handbook by APHON

Sickle Cell Disease Handbook for Patients & Families The Association of Pediatric Hematology/Oncology Nurses has developed a resource for sickle disease patients and their families. The Sickle Cell Disease Handbook provides an overview for patients and their families on SCD. Each handbook is written at the 6th grade level allowing parents to

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    New Warrior Channel: Lady Bunkumi & Sickle Cell

New Warrior Channel: Lady Bunkumi & Sickle Cell

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