Posts Tagged ‘About Sickle Cell’
Connect with SCW today
Connect with over 25,000 patients and we are still growing! Sickle Cell Warriors is the largest patient-run global advocacy organization for sickle cell disease. Connect with us today!
Read MoreWEBINAR SERIES Sickle Cell Science: Path to Progress
WEBINAR SERIES Sickle Cell Science: Path to Progress To commemorate Sickle Cell Awareness Month 2019, this September the National Heart, Lung, and Blood Institute (NHLBI) and partner agencies and institutions will host Sickle Cell Science: Path to Progress, a four-part webinar series that will discuss genetic therapies, progress in pain management, bone marrow transplants and other therapies, and…
Read MoreFREE Webinar: Hydroxyurea for SCD
June 25, 2019 6:00 – 7:00 p.m. Eastern time This webinar will provide information on hydroxyurea, share a story from an individual who has taken hydroxyurea, and feature sickle cell disease experts who will answer questions the audience may have. The webinar will focus on the use of hydroxyurea in young adults and adults. Register…
Read MoreASGCT Patient Education on Blood Disorders
What is this? The American Society of Gene & Cell Therapy (ASGCT) is proud to announce the first release of the Society’s Patient Education program, a new initiative for 2019. The new patient-centered portal is designed by ASGCT committee volunteers in coordination with patient advocacy groups to educate and inform patients, families, and the general…
Read MoreHolistic Health and Sickle Cell Disease Webinar
Holistic Health and Sickle Cell Disease: A focus on Mental and Behavioral Health Thursday, February 28, 2019 1:00 – 2:15 pm EST Register Here Sickle cell disease (SCD) affects millions globally, disproportionately impacting certain racial and ethnic minority populations, including African Americans, Latinos and people of Middle Eastern, Indian, Asian and Mediterranean descent. According to…
Read MoreTracing sickle cell back to one child, 7,300 years ago
Tracing sickle cell back to one child, 7,300 years ago Check out this amazing article by Nalina Eggert of BBC News for a journey of SCD from 7,300 years ago. The article contains videos and text that will provide a new perspective for how SCD developed and continues to influence the lives of people who suffer…
Read MoreSickle Cell Disease Handbook by APHON
Sickle Cell Disease Handbook for Patients & Families At this time, the Association of Pediatric Hematology/Oncology Nurses has developed a resource for sickle disease patients and their families. For one thing, The Sickle Cell Disease Handbook provides an overview for patients and their families on SCD. Each handbook allows parents to review it with their…
Read MoreTell Your Son!
Its important to educate our sons on trait awareness, and not just our daughters.
Read MoreExpert Patient Series Register HERE!
Registration for the Expert Patient classes is now open.
Read MoreSickle Cell Crisis: A Not-So Friendly Reminder
Tosin reminiscences about the genetic predisposition that forces her to maintain a life of balance. Your body tells you…Be Balanced or Else….!
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