Sickle Cell Warriors

Tag "About Sickle Cell"

    Tomorrow, June 19, is World Sickle Cell Day!

Tomorrow, June 19, is World Sickle Cell Day!

On World Sickle Cell Day, Sickle Cell Warriors Takes Action to Improve Global Health Outcomes Sickle Cell Warriors, with the American Society of Hematology and other Sickle Cell Disease Coalition partners, debuts a public service announcement and global resources library to help improve newborn screening and early care for children

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    Public Meeting for Patient-Focused Drug Development on Chronic Pain

Public Meeting for Patient-Focused Drug Development on Chronic Pain

Public Meeting for Patient-Focused Drug Development on Chronic Pain Meeting Information On July 9, 2018, FDA is hosting a public meeting on Patient-Focused Drug Development for Chronic Pain. FDA is interested in hearing patients’ perspectives on chronic pain, views on treatment approaches, and challenges or barriers to accessing treatments for

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    SCD Adult Support Groups in Southern California

SCD Adult Support Groups in Southern California

California Warriors, great news! Cayenne Wellness is now hosting monthly support group meetings in Fresno, San Diego, Los Angles, Loma Linda, and Antelope Valley. You get to meet others with SCD and get valuable info about improving your health. You also gain an understanding how others cope with SCD, share

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    Sickle Cell Spoken Word Poetry

Sickle Cell Spoken Word Poetry

Spoken word is an oral art that melds together words and phrases in beautiful patterns that are punctuated by intonation and undulation.  Take a moment to hear this amazing spoken word poet shine a light on the world of sickle cell.  We hope you are as moved as we were!

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    Tracing sickle cell back to one child, 7,300 years ago

Tracing sickle cell back to one child, 7,300 years ago

Tracing sickle cell back to one child, 7,300 years ago Check out this amazing article by Nalina Eggert of BBC News for a journey of SCD from 7,300 years ago.  The article contains videos and text that will provide a new perspective for how SCD developed and continues to influence the

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    5th Annual Lowcountry Sickle Cell Disease Symposium

5th Annual Lowcountry Sickle Cell Disease Symposium

5th Annual Lowcountry Sickle Cell Disease Symposium Therapeutic Options in Sickle Cell Disease Saturday, April 28, 2018 MUSC Drug Discovery Building 97 Jonathan Lucas Street Charleston, SC   Conference Description Sickle Cell Disease is the most common inherited blood disorder. Due to improvements in childhood care, many more patients are living

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    Meet Brittany: Caregiver, poet, and writer

Meet Brittany: Caregiver, poet, and writer

This week’s warrior in the spotlight is Brittany Hightower.  Brittany is a caregiver who is beautiful, intelligent, and passionate about poetry. And oh yeah, she has sickle cell. How old where you when you found out you had sickle cell?    I was diagnosed at birth. How were you able

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    How to Travel Safely with Sickle Cell April Farrell-Hasty

How to Travel Safely with Sickle Cell April Farrell-Hasty

I write this as many warriors will be traveling soon. I have traveled extensively and frequently as a yoga teacher trainer that teaches at yoga retreats in exotic destinations. Here is what I have learned. Always see your doctor before you travel.  There are many reasons for this. First, you

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    Sickle Cell and Endari

Sickle Cell and Endari

**Due to a production issue Endari is not currently available, but as soon as becomes available we will post it up on the website. Hello everyone, great news! Endari is available as of December 17. Endari is a concentrated form of L-Glutamine specially formulated for sickle cell disease. When taken

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    Sickle Cell Disease Handbook by APHON

Sickle Cell Disease Handbook by APHON

Sickle Cell Disease Handbook for Patients & Families The Association of Pediatric Hematology/Oncology Nurses has developed a resource for sickle disease patients and their families. The Sickle Cell Disease Handbook provides an overview for patients and their families on SCD. Each handbook is written at the 6th grade level allowing parents to

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    New Warrior Channel: Lady Bunkumi & Sickle Cell

New Warrior Channel: Lady Bunkumi & Sickle Cell

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    Sickle Cell Warrior Heather on Dr. Phil Show

Sickle Cell Warrior Heather on Dr. Phil Show

One of our esteemed Warriors in the Spotlight, Heather Avant was featured on the Dr. Phil show on December 17, 2015. She talks about how it is to live with sickle cell disease, what the pain feels like, going through a VOC, and the stigma that we often face living with

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    Sickle Cell and Getting Prescriptions Filled

Sickle Cell and Getting Prescriptions Filled

Have you ever had a doctor refuse to write you a script or a pharmacist refuse your prescription? James gives some tips on how to get your prescriptions ordered and filled, no matter what state you live in.

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    Tell Your Son!

Tell Your Son!

Its important to educate our sons on trait awareness, and not just our daughters.

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    Expert Patient Series Register HERE!

Expert Patient Series Register HERE!

Registration for the Expert Patient classes is now open.

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Sickle Cell PSA

From CT Sickle Cell Org---my favorite SCD PSA.

Join the Sickle Cell Warriors Database

Become a warrior. Sign up to be a team leader/member. Get contacted directly by SCW about events and research in your area. YOUR INFORMATION WILL NOT BE SHARED/SOLD TO ANY THIRD PARTIES. (See privacy policy)
Example SS, SC, Beta Thal, Monroe, etc.
You will receive pre-screened research opportunities on sickle cell disease
You will receive info about the sessions on the advocacy training classes
Read more here: http://sicklecellwarriors.com/classes/
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