For Teachers: Sickle Cell Disease at School

For educators, parents and children with sickle cell disease, this video is a good point of education on the challenges faced by children and adults with sickle cell disease. You can send this link to each of your childs’ teacher…and it will help start the conversation so that the teacher knows what to expect, and…

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Sports Screening for SC Trait

Is sports screening for sickle cell trait a step in the right direction? Check out this video, and let us know your thoughts, either in the comments section or make/tag a video.

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My Nicosan Story

Here is a question that I got from a reader on Nicosan that I would like to address: A friend of mine just started on Nicosan 12/12/08, due to lapse in medical coverage and not having monthly blood exchanges, he has been having severe pain every week, resulting in 2-3 ER visits/month since 9/08. Since…

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Changing the Image

Okay sickle cell warriors, it’s time for some frank talk. I’m sick and tired of hearing how lazy people with sickle cell are. I’m sure that the majority of us aren’t…but for some reason, the public has the notion that we are just milking ‘the system’ for our pain, are too lazy to get a…

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