Posts Tagged ‘About Sickle Cell’
I got an A!
Hey, I just got my grades for this last semester. I rocked out y’all! My GPA is 3.9 and I’m still banging out straight A’s. Oh yeah, oh yeah *jumping up and down* Anyway, in the spirit of giving, sharing and all that Jazz, I’m going to host the sickle cell presentation I created for…
Read MoreThe Sickle Cell Drug Addicts
I’m a nurse in a NYC public hospital and we have a cohort of patients w/SC who I see in the ED at least everyday or every other day. The hospital has a SC clinic but when it closes the patients come to the ED. They don’t have to wait and everyone knows them. So…
Read MoreConnecting With Someone With Sickle Cell
I just got off the phone with Milan, a reader from the blog who is the absolutely most fabulous chick I’ve had the pleasure of meeting with sickle cell. She’s like a young version of me, all spunk, feisty, full of determination, attitude, sass and heart. She’s actually what I wish I was when I…
Read MorePeople with the Trait Have Pain Too!
This is a comment from one of my readers that is 46 that has the sickle cell trait but not the disease. Some times I have unexplained pain in one of my feet, but it’s usually only when it’s cold, and after reading some of your blogs, I see that cold weather seems to trigger…
Read MoreDealing with Sickle Cell Without Using Drugs
My daughter who is 12 years old (has SS)is thinking about taking Hydroxyurea instead of getting monthly blood transfusions. If Hydroxyurea is not right for sickle cell people what other thing can they take or do if they don’t want the blood monthly? Do you know? First of all, know that I’m not a licensed…
Read MoreAvascular Necrosis
I’m worried about my hips. I’ve been reading lately about avascular necrosis of the hip and the more I read about it, the more I think I have it. From what I understand, the sickling of cells causes the blocking off of tiny cappillaries, arterioles and venuoles (a sickle cell trait), which causes portions of…
Read MoreI Have Bad Veins
One of the commonalities of sickle cell warriors is that fact that after a zillion hospital admissions and ER visits, eventually, our veins go into hiding from all the trauma. The medications that help us also help to scare the beejesus out of our veins as well as all those blood draws! My hands are…
Read MoreSickle Cell & Cold
Today I was asked a question by a friend, “Which do you like better, hot or cold?” My answer was a vehement HOT! Not just because it’s so miserable being cold but mainly because when I’m cold for a period of time (like more than 20 minutes), I put myself at a higher risk of…
Read More10 Things Good About Sickle Cell
Okay, I’m not here just to whine and complain. So in the spirit of giving thanks, I’m listing the top 10 reasons I can think of why it’s great to be a sickle cell warrior. You get a free “get out of work” pass from school, work or home whenever you are feeling tired, down…
Read MorePain Can Kiss My Ass
Meet Elise…isn’t her attitude so fuckin’ incredible?
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