Living with Sickle Cell

Posts feature topics on work, school, travel, life, diet and all other coping strategies with sickle cell.

SCW Video: The Sickle Cell Crisis Diet

https://www.youtube.com/watch?v=77RMQw7vBG0

Sickle Cell Disease Therapeutics Conference

Sickle Cell Disease Therapeutics Conference on September 13, 2018 Global Blood Therapeutics (GBT) will host the 7th Annual Sickle Cell Disease Therapeutics Conference (SCDTC) at...

No More Lifespans!

Join Tosin in this video to learn why you should disregard the number your doctor gave you about your lifespan.  Be inspired to join...

7th Annual Sickle Cell Disease Therapeutics Conference

The 7th Sickle Cell Disease Therapeutics Conference is a forum to discover the latest advancements and future trends impacting the sickle cell community.  Conference...

Mary: The Story of a Warrrior Wife

I'm not a warrior but I'm a warrior wife, so I've spent time on the other side of your story. My story feels like...

2018 SCD Seminar & Hotel Registration

Reserve Your Hotel Room Today! All SCD Warriors who register before August 15th are guaranteed a bed at the fabulous Courtyard by Marriott! That means,...

S.2465, the Sickle Cell Disease Research, Surveillance, Prevention and Treatment Act...

S.2465, the Sickle Cell Disease Research, Surveillance, Prevention and Treatment Act of 2018 In February 2018, the sickle cell community celebrated with the announcement of...

GBT’s Phase 3 HOPE study Results

GBT Announces Positive Top-line Data from Part A of the Phase 3 HOPE Study of Voxelotor in Sickle Cell Disease Primary Endpoint Achieved; 58 Percent...

Sickle Cell Patient & Family Educational Symposium

The Annual Sickle Cell Disease Patient & Family Educational Symposium is the only national sickle cell convention designed, created and hosted by the sickle...
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