Study Finds Emergency Care is Not Ideal Most people with sickle cell disease (SCD) in the U.S. are happy with their PCPs, but less so with emergency care given at a hospital to manage severe pain, according to a survey of more than 400 teenage and adult patients. How a person expects to be treated […]
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WEBINAR SERIES Sickle Cell Science: Path to Progress To commemorate Sickle Cell Awareness Month 2019, this September the National Heart, Lung, and Blood Institute (NHLBI) and partner agencies and institutions will host Sickle Cell Science: Path to Progress, a four-part webinar series that will discuss genetic therapies, progress in pain management, bone marrow transplants and other therapies, and
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All Patients Enrolled in Phase 3 HOPE Study Showing Statistically Significant and Sustained Improvements in Hemoglobin with Voxelotor Global Blood Therapeutics, Inc. (GBT) today announced new results from its Phase 3 HOPE Study of voxelotor in patients ages 12 and older with sickle cell disease (SCD). The findings from 274 adolescents and adults treated with
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The Sickle Cell Society is excited to invite you to our 40th Anniversary Gala Ball. Hosted in the spectacular Royal National Hotel in Central London, the 40th Anniversary Gala Ball celebrates 40 years of working within the sickle cell community. You are invited to join the celebrations, starting with a red carpet drinks reception attended
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Sickle Cell Disease Association of America’s 47th National Convention October 9-12, 2019 Baltimore, MD The National Convention is a four-day conference designed to address the multi-factorial aspects of SCD and sickle cell trait. In an effort to advocate for improved quality of life for individuals and families affected with SCD and its associated morbidity and
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Sickle Cell Disease Association of America (SCDAA)’s 6th Annual 1K, 2K and 5K Walk/Run With the Stars June 22, 2019 Canton Waterfront in Baltimore, MD Walk with the Stars is one of SCDAA’s largest events dedicated to finding better treatments and a cure for sickle cell disease (SCD). Every dollar raised goes towards preventing the
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The next annual FSCDR symposium will take place June 7-9, 2019, in Fort Lauderdale, FL. The Foundation for Sickle Cell Disease Research (FSCDR) is committed to supporting innovative research in sickle cell disease (SCD) to help maximize quality of life and improve survival for the generations of people affected by SCD. Learn more and register today. Reposted from
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The Teen Girls Organization (T Go) is a student led organization in Dar es Salaam, Tanzania that works with girls in the local community to educate them in areas not taught in their school system. The project organizes an annual career event with the intent of inspiring teen Tanzanian girls to pursue non-traditional career paths.
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The Sickle Cell Disease Association of America (SCDAA)’s 47th Annual National Convention October 9-12, 2019 Baltimore, MD This year’s theme is: Sickle Cell Community Embracing Change Together. Last year, the convention was attended by over 600 researchers, physicians, nurses, social workers, and individuals living with sickle cell disease and sickle cell trait. If you are
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The National Academies of Sciences, Engineering, and Medicine is developing a strategic plan and blueprint for addressing sickle cell disease in the United States. The committee will provide guidance on priorities for programs, policies, and research. On Tuesday, April 16, 2019, the Committee on Addressing Sickle Cell Disease: A Strategic Blueprint and Plan for Action convened
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