GBT Livestream Registration
Preregister for the Sickle Cell Disease Therapeutics Conference right here. Watch the livestream here on the Sickle Cell Warriors website.
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SC News and Research
(un)Summit: A RARE Patient Advocacy
Global Genes LIVE! Get ready for an (un)Summit! Find a variety of engaging and educational online events, meet-ups, workshops and performances. (un)Summit: September 15-25, 2020 A RARE Patient Advocacy (un)Summit. This two-week event will provide members of the rare disease community and allies with ways to connect and engage with each other through interactive activities
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A New SC Blog – Check it out!
Micromattie.com is launching a blog focused on recent developments and best practices in healthcare for Sickle Cell patients. Check it out!
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COVID Sickle Cell Warriors Impact Study
To best serve you during this trying year, Sickle Cell Warriors, Inc. has developed a short study. Data received will be used to guide program development and education. This falls under our mission objectives of Research, Advocacy & Education.
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Emergency Care is Not Ideal for SC Patients
Study Finds Emergency Care is Not Ideal Most people with sickle cell disease (SCD) in the U.S. are happy with their PCPs, but less so with emergency care given at a hospital to manage severe pain, according to a survey of more than 400 teenage and adult patients. How a person expects to be treated
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WEBINAR SERIES Sickle Cell Science: Path to Progress
WEBINAR SERIES Sickle Cell Science: Path to Progress To commemorate Sickle Cell Awareness Month 2019, this September the National Heart, Lung, and Blood Institute (NHLBI) and partner agencies and institutions will host Sickle Cell Science: Path to Progress, a four-part webinar series that will discuss genetic therapies, progress in pain management, bone marrow transplants and other therapies, and
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GBT Announces Updated 24-Week Efficacy Data
All Patients Enrolled in Phase 3 HOPE Study Showing Statistically Significant and Sustained Improvements in Hemoglobin with Voxelotor Global Blood Therapeutics, Inc. (GBT) today announced new results from its Phase 3 HOPE Study of voxelotor in patients ages 12 and older with sickle cell disease (SCD). The findings from 274 adolescents and adults treated with
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Sickle Cell Society 40th Anniversary Gala Ball
The Sickle Cell Society is excited to invite you to our 40th Anniversary Gala Ball. Hosted in the spectacular Royal National Hotel in Central London, the 40th Anniversary Gala Ball celebrates 40 years of working within the sickle cell community. You are invited to join the celebrations, starting with a red carpet drinks reception attended
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SCDAA National Convention
Sickle Cell Disease Association of America’s 47th National Convention October 9-12, 2019 Baltimore, MD The National Convention is a four-day conference designed to address the multi-factorial aspects of SCD and sickle cell trait. In an effort to advocate for improved quality of life for individuals and families affected with SCD and its associated morbidity and
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SCDAA’s 6th Annual Walk with the StarsÂ
Sickle Cell Disease Association of America (SCDAA)’s 6th Annual 1K, 2K and 5K Walk/Run With the Stars June 22, 2019 Canton Waterfront in Baltimore, MD Walk with the Stars is one of SCDAA’s largest events dedicated to finding better treatments and a cure for sickle cell disease (SCD). Every dollar raised goes towards preventing the
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