July 24 – 28, 2019 Plano, TX The Annual Sickle Cell Disease Patient & Family Educational Symposium is the only national sickle cell convention designed, created, and hosted by the sickle cell patient and family community. Each year the meeting is hosted by a partnership of sickle cell community-based organizations, patients, and advisors. We are […]
6th Annual Sickle Cell Patient & Family Educational Symposium Read More »
Dear Sickle Cell Community, Join a 5-week webinar series on the topic “Blood Transfusions: What You Need to Know and Do”. The interactive series will include in-depth information on blood matching, iron overload, blood donations, and patient-provider communication techniques/skills. Register here for the educational series: https://ghpc.wufoo.com/forms/the-warrior-university-online-series/ *Registry and Education for Hemoglobinopathies and Hemovigilance/Transfusion Therapy in Georgia
Warrior University Online Series Read More »
VOICE Crisis Alert App First national app created for patients and families with sickle cell disease The app stores all its data locally on your phone, so it’s private. In addition to being a crisis pain tracker tool storable for 90 days with an in-app pain diary to share with your health care provider and
VOICE Crisis Alert App for SC Read More »
Sickle Cell Disease Handbook for Patients & Families At this time, the Association of Pediatric Hematology/Oncology Nurses has developed a resource for sickle disease patients and their families. For one thing, The Sickle Cell Disease Handbook provides an overview for patients and their families on SCD. Each handbook allows parents to review it with their
Sickle Cell Disease Handbook by APHON Read More »
For educators, parents and children with sickle cell disease, this video is a good point of education on the challenges faced by children and adults with sickle cell disease. You can send this link to each of your childs’ teacher…and it will help start the conversation so that the teacher knows what to expect, and
For Teachers: Sickle Cell Disease at School Read More »
video on some of the most common intravenous accesses sickle cell patients have
Video:Ports, Catheters & IVs Read More »
