If you are in the hospital, in a crisis, and your pain is not under control….what should you do? You must be assertive in your care. Don’t be rude, or aggressive, just strongly assert your needs, knowing and insisting that your needs and rights are prioritized. Here is a short video that may give […]
Pain Management in the Hospital Read More »
Why not just skip the rigors of the emergency room altogether? Try the direct admit system. It’s like concierge medical care.
Direct Admit: An Alternative to the Emergency Room Read More »
For many of us with sickle cell, going to the emergency room is one of the worst parts of having the disease. Here are a few tips to help you make the ER visit less stressful and more successful. Good luck!
Tips for Going to the Emergency Room with Sickle Cell Read More »
Have you ever wondered what the nurses are saying in the nurses’ station about you as a sickle cell patient? Well, wonder no further…Proceed at your own risk.
Nurse Vent on Sickle Cell Patients Read More »
To the caregivers, family, friends and spouses of sickle cell warriors, many wonder how to cope and deal when their loved one is in pain. People deal with it differently: some shut down, some stare, some ignore you writhing in agony. Tosin Coker has created a wonderful video blog on a sickle cell warriors’ perspective
Supporting Someone Through a Sickle Cell Crises Read More »
Meet Elise: a beautiful, eloquent SCD warrior bravely sharing her story of the struggles of dealing with sickle cell.
I was wondering if anyone else has pain right before their period starts or during. I never was a woman to get cramps or migraines but i do get pains in my left knee right before my period starts. Lately I’ve been also feeling drowsy and drained. I have said on here several times that
Sickle Cell & Your Period Read More »
I’m sure many sickle cell warriors can relate to having near death experiences. I’ve been deathly ill a quite a number of times, but out of those numerous admissions, only once can I quantify as being near death. The first was in 1993. I had Malaria, Cholera, and Pneumonia when I was 13 in Nigeria.
Near Death Experiences with Sickle Cell Read More »
As a transcontinental transplant, I experienced alot of dramatic changes in how I was treated as a sickle cell patient in Nigeria vs my treatment in America. Those of you who have read the archives know that although I was born in Nigeria, I only lived there from birth to 4 years old, and then
Being Sick in Nigeria vs Sick in America Read More »
There is a great discussion over at the Ning Sickle cell board over coping when you are in the hospital in pain and doctors don’t believe your pain and ask you what your doses of pain meds are, and when you tell them, they respond “Oh that’s too high, that can’t be right, I’m only
In the Hospital in PainCop Read More »
