Hello everyone – here are some World Sickle Cell Day Activities! As you probably know, World Sickle Cell Day is around the corner on June 19th! This was established by the World Health Organization (WHO) and is celebrated all over the world. A few years ago, most of us didn’t know when it was, and […]
World Sickle Cell Day Activities! Read More »
Sickle Cell Warriors, check out this pediatric voucher!!! We need your help! Please read the letter below and send your comment into the FDA. We have until February 16th to respond as a community. The deadline is coming up quick! The Pediatric Rare Disease Voucher Program was created for sickle cell disease, however, due to
Help Sickle Cell Obtain the Rare Disease Pediatric Voucher Read More »
WOOHOO!!!! We made it! The 2014 Sickle Cell Warriors Gathering is now officially over! Thank you so much for everyone who has attended and made this experience phenomenal. Lakiea & I hope that you found it extremely informative, educational, inspiring, and supportive. There are so many people to thank, so we are just going to
SC Gathering & Educational Symposium Appreciation Read More »
Being the parents of a Sickle Cell Warrior (SCW), we know giving up is never an option. Even when we don’t receive the needed support to get through each crisis, we can never lose hope or our smile. Your child survives merely through the pain from your strength/smile. But who holds you up when exhaustion
Sickle Cell Families Need Direct Support Services Read More »
2014 Sickle Cell Community Gathering & Education Symposium PROGRAM AGENDA Please note that this schedule is a guideline, but times/rooms/and sessions are not set in stone. Announcements will be made if there are any changes. Always bring your journal or notebook with you. THURSDAY, JULY 17TH 8:00PM – 9:00PM WELCOME Taming the Hospital
Program for the SCW Gathering & Educational Symposium July 17-20 Read More »
Hey Warrior Family! We hope you are doing well. Sickle Cell Warriors, Inc. is planning the 2nd Annual Sickle Cell Community Gathering and Educational Symposium. This year it is in Atlanta, GA from July 17-20, 2014 at the DoubleTree by Hilton Hotel in Buckhead. We are delighted to invite you to attend and participate in
All About the Sickle Cell Gathering Read More »
Here are the Prayer & Meditation Guidelines for the first ever 50 Hour International Day of Prayer for Sickle Cell Disease #SickleCell50
Guidelines for the Day of Prayer #SickleCell50 Read More »
It’s been a long time coming, but here is our first international challenge that focuses how we can change the world—together.
Remember at the beginning of the year when Lakiea and I promised that this year was going to be EPIC and so different from every other year of SCW? We’ve been working hard to make that happen. We are only 3 months in, and we’ve already stepped it up with the monthly challenges, January Chicago
First Quarter Update from SCW, Inc. Read More »
We received this message for Advocacy day. Although you are not in Washington DC, you can still help today. Leave a Facebook message, tweet, or email your state representatives asking them to support the Re-authorization of the Sickle Cell Treatment Act. #sicklecellTA. Read below for more details. Here is how:
Warriors, Please Act Now! #SickleCellTA Social Media Takeover to Support our Advocates! Read More »
