Posts Tagged ‘Advocacy and Activism’
12 Things You Didn’t Know about Sickle Cell Warriors, Inc.
Ever wanted to learn more about what goes on behind the scenes at Sickle Cell Warriors, Inc? Well here is a short overview to give you further insights.
Read MoreOrganization in the Spotlight: Have A Heart for Sickle Cell Anemia Foundation
This week’s organization in the spotlight is the Have A Heart for Sickle Anemia Foundation. Established in 1990 by the late Linda Collins it has continued on its vision to be a strong advocate and make a difference in improving the quality of life for those affected by sickle cell disease. With a web page…
Read MoreTell the FDA
The FDA meeting is coming up on February 7, 2014 in Silver Springs, MD. Sickle cell advocates, patients, families, and members of the health care industry will all be in attendance. Even if you cannot come, your participation is necessary. It is time to use your voice. Tell the FDA how you are impacted by…
Read MoreWhy is the FDA Meeting on Sickle Cell Important?
I just turned in my answers to the FDA questions. A member of the SCW Facebook page said this, “What is the big deal with the FDA meeting, and why should we even try to go? Especially since most of us that have sickle cell are on a limited income, it makes no sense to…
Read MoreExpert Patient Series Register HERE!
Registration for the Expert Patient classes is now open.
Read MoreT-Boz and Sickle Cell on the Doctors show
I am so excited to see this!!! FINALLY Sickle cell takes center stage. Watch TBoz talk about Sickle Cell on the Doctor’s show. This was aired yesterday. I’m impressed with her speaking out on larger platforms, and bringing sickle cell to the limelight. Talking about how we are treated in the ED, talking about what…
Read MoreOrganization in the Spotlight: Baton Rouge Sickle Cell Anemia Foundation
Learn more about the Baton Rouge Sickle Cell Anemia Foundation, and reach out to them or the sickle cell organization in your neighborhood to see how you can help!
Read MoreAdvocacy Training
Brief synopsis of the Advocacy Training class. Get ready to fire up your activism, get involved, and take sickle cell awareness to the next level.
Read MoreRIP Jasmine Bailey, the Warrior with a Microphone
SCW mourns the passing of one of our own, a warrior with a microphone. Rest in Peace Jaz.
Read MoreYear of Achievement
Dr. Bailey expounds on the strides that SCW has completed this year, and plans for next year.
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