Sickle Cell Diet Hey guys, I just lost an amazing seven pounds on the sickle cell diet plan! You didn’t know about the SC diet plan? Oh, my gosh, you have to try it. Like, it’s amazing. It’s the best. Any time you want to lose a little weight, first you have to make sure […]
The Sickle Cell Diet Video Read More »
Join Tosin in this video. Learn to disregard the number your doctor gave you about your lifespan. Join her in saying, “No more lifespans!”
No More Lifespans! Read More »
Spoken Word Spoken word is an oral art. It melds words and phrases together in beautiful patterns. Intonation and undulation punctuate these patterns in spoken word. Take a moment to hear this amazing spoken word poet. Let’s shine a light on the world of sickle cell. We hope you are as moved as we are!
Sickle Cell Spoken Word Poetry Read More »
One of our esteemed Warriors in the Spotlight, Heather Avant was featured on the Dr. Phil show on December 17, 2015. She talks about how it is to live with sickle cell disease, then what the pain feels like, going through a VOC, and the stigma that we often face living with an invisible illness. Above
Heather on Dr. Phil Show Read More »
I am so excited to see this!!! FINALLY Sickle cell takes center stage. Watch TBoz talk about Sickle Cell on the Doctor’s show. This was aired yesterday. I’m impressed with her speaking out on larger platforms, and bringing sickle cell to the limelight. Talking about how we are treated in the ED, talking about what
T-Boz and Sickle Cell on the Doctors show Read More »
Charmaine made this wonderful video that I just had to share with everyone. The more I do this, the more I realize that we are all so very, very, connected. It really made my day so I’m sharing it with everyone. Well done Charmaine! Keep living, striving, and fighting. xxx~SCW
Video: Failure is NOT an Option Read More »
You are your greatest advocate. When ever you are sick, you’re in the hospital, or even emergency room, use the greatest tool that you have in order to make sure that your needs are met and that your health is a priority. The person that has the greatest stake in your health and well-being is
The Greatest Advocate Read More »
Another sickle cell fun fact: taking a shower in the mornings may lead to a painful sickle cell crisis. Check out the video below and share your experiences.
Pain from a Shower Read More »
If you are in the hospital, in a crisis, and your pain is not under control….what should you do? You must be assertive in your care. Don’t be rude, or aggressive, just strongly assert your needs, knowing and insisting that your needs and rights are prioritized. Here is a short video that may give
Pain Management in the Hospital Read More »
For educators, parents and children with sickle cell disease, this video is a good point of education on the challenges faced by children and adults with sickle cell disease. You can send this link to each of your childs’ teacher…and it will help start the conversation so that the teacher knows what to expect, and
For Teachers: Sickle Cell Disease at School Read More »
