SC News and Research Archives - Sickle Cell Warriors Inc

Sickle Cell Trait 360 (SCT360): Full Sickle
Hemoglobinopathy Specturm Education

PRESENTED BY : As One Foundation, The Sickle Cell Community Consortium, The Chris ‘CJ’Foundation,WHATZ DA COUNT on SCT, and NSCRXPTION CO. Friday, August 19, 2022 8:45 AM – 3:30 PM (Central) Series Objectives Identify and understand the disorder of sickle cell trait along the spectrum of sickle hemoglobinopathies. Integrate risk factors of sickle cell trait […]

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Hemoglobinopathy Specturm Education Read More »

THE 16TH ANNUAL SICKLE CELL DISEASE RESEARCH AND EDUCATIONAL SYMPOSIUM AND 45TH NATIONAL SICKLE CELL DISEASE SCIENTIFIC MEETING

Newest Features, Resources, SC News and Research / SCW Team

5th Annual Sickle Cell Disease Access To Care Summit Friday, June 10th Healthcare Access in Sickle Cell Disease Plenary Session Curative Therapies & Gene Therapy Education Session The Patient Symposium 16th Annual Sickle Cell Disease Research and Educational Symposium Saturday, June 11th Education sessions on HealthTech, Healthcare Screening, Alternative & Adjunct Therapies Keynote Speaker Presentation

THE 16TH ANNUAL SICKLE CELL DISEASE RESEARCH AND EDUCATIONAL SYMPOSIUM AND 45TH NATIONAL SICKLE CELL DISEASE SCIENTIFIC MEETING Read More »

10th annual sickle cell disease therapeutics conference poster

SCW & GBT Livestream

Advocacy and Activism, Newest Features, SC News and Research / SCW Team

10th Annual Sickle Cell Disease Therapeutics Conference September 15, 2021 9 am – 4 pm EST Visit the SCW Facebook page to join the GBT Livestream Sickle Cell Warriors, Inc. (SCW) and (Global Blood Therapeutics) GBT partner to host the annual Livestream of the 2021 Sickle Cell Disease Therapeutics Conference (SCDTC). Firstly, learn about the

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Learn more about the Hibiscus Study

Newest Features, SC News and Research / SC Warrior

Learn more about the Hibiscus Study Clinical trials are critical to finding new or improved treatments for diseases. By participating in a clinical trial for sickle cell disease (SCD), you could help researchers better understand the disease or find new treatments that can be given to SCD patients in the future. About the Hibiscus Study™

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New data for Vertex and CRISPR Therapeutics

Newest Features, SC News and Research / SCW Team

Vertex and CRISPR Therapeutics Present New Data in 22 Patients With Greater Than 3 Months Follow-Up Post-Treatment With Investigational CRISPR/Cas9 Gene-Editing Therapy, CTX001™ at European Hematology Association Annual Meeting – Beta thalassemia: All 15 patients were transfusion independent after CTX001 infusion – – Sickle cell disease: All seven patients were free of vaso-occlusive crises after

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Are You at Risk for Multiple Myeloma?

Living with Sickle Cell, SC News and Research / SCW Team

Multiple myeloma is a relatively rare cancer that develops in the bone marrow. As the cancerous plasma cells accumulate in the marrow, they crowd out other healthy blood cells. Unfortunately, the symptoms including bone pain, mental fogginess, excessive thirst may develop slowly over time and don’t usually appear until the disease reaches an advanced stage. In

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Pediatric Depression in SC

SC News and Research / SCW Team

Depression and Kids with SCA Older age and higher education level showed increased scores. “A new study from Nigeria found that depression in young patients with sickle cell disease (SCD) was linked with increasing age and education level.” There is a new Nigerian study with teens and children who have sickle cell anemia (SCA). The

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SC Warrior Death due to Hospital Negligence

Advocacy and Activism, Complications of Sickle Cell, Featured Warrior, Living with Sickle Cell, SC News and Research, Tosin’s Corner, Warriors in the Spotlight / SCW Team

Sickle Cell Warrior Death Inquest Reveals Gross Negligence in Hospital This makes me so mad. Rest Pain-free Mr. Evan Smith, Your death will not be in vain, you will save many warriors, I promise. Shame on you North Middlesex Hospital. All their excuses don’t matter. This young man lost his life due to poor medical

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Register for SCDTC LiveStream

SC News and Research / SC Warrior

pre-register and watch the sickle cell disease therapeutics conference here live sickle cell disease awareness month warriors

Pre-Registration for LiveStream

Advocacy and Activism, Resources, SC News and Research / SC Warrior

Click here to register and watch the sickle cell disease therapeutics conference. Watch live here on Tuesday; sickle cell disease awareness month is for warriors, it’s our time to shine!

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