SCW Video: Why I’m a Health Activist
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Living with Sickle Cell
Livestream of FDA-ASH SCD Clinical Endpoints Workshop
Livestream of FDA-ASH SCD Clinical Endpoints Workshop October 17-18, 2018 The FDA-ASH Sickle Cell Disease (SCD) Clinical Endpoints Workshop aims to identify opportunities to bring uniformity and standards to existing SCD endpoints, identify gaps, and propose development of new endpoints as a focus for future research. Due to the high demand for this program, we
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VOICE Crisis Alert App for SC
VOICE Crisis Alert App First national app created for patients and families with sickle cell disease The app stores all its data locally on your phone, so it’s private. In addition to being a crisis pain tracker tool storable for 90 days with an in-app pain diary to share with your health care provider and
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Get the Match Livestream
Get the Match Livestream September 28 1 pm – 4 pm PST (8:00 pm – 11 pm GMT) There is a point in which all of us living with SCD will consider undergoing a bone marrow transplant to see if it can help our condition. Although there have been success stories, it’s important to educate
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SCW Video: Don’t Call me a Sickler!
Don’t call me a sickler! Watch this video to learn why … and you can see more videos too. Hi this is your Sickle Cell Warrior. I finally decided to make a YouTube don’t call me a sickler video. There has been something on my mind. Someone left a message on my Facebook page and
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The SC Warrior Team is Expanding
Our team is expanding! Do you love to write? Are you a social media master? Do you create amazing graphic designs? Apply today to become part of the Sickle Cell Warrior’s team! The SCW Team is expanding to include: SOCIAL MEDIA CONTENT CREATORS We are looking for 7 social media content creators for our team
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The Sickle Cell Diet Video
Sickle Cell Diet Hey guys, I just lost an amazing seven pounds on the sickle cell diet plan! You didn’t know about the SC diet plan? Oh, my gosh, you have to try it. Like, it’s amazing. It’s the best. Any time you want to lose a little weight, first you have to make sure
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Sickle Cell Disease Therapeutics Conference
Annual Sickle Cell Disease Therapeutics Conference September 13, 2018 GBT will host the 7th Annual Sickle Cell Disease Therapeutics Conference (SCDTC) at the Park Central Hotel in New York City on September 13, 2018. This annual meeting brings together healthcare professionals, patients, community based organizations and advocates, investors, policy makers and industry representatives. They will
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No More Lifespans!
Join Tosin in this video. Learn to disregard the number your doctor gave you about your lifespan. Join her in saying, “No more lifespans!”
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