Hello everyone, Patients all over the world struggling with sickle cell disease often go to the hospital when they are in a crisis and receive poor medical care from healthcare workers who have little to no knowledge of SCD. This has got to stop. In this section, we will be featuring real stories from sickle […]
Rainy Lake Medical Center, International Falls, MN – Negative Review Read More »
**Due to a production issue Endari is not currently available, but as soon as becomes available we will post it up on the website. Hello everyone, great news! Endari is available as of December 17. Endari is a concentrated form of L-Glutamine. Its formuls is for sickle cell disease. When taken as directed, it has
Sickle Cell and Endari Read More »
What to do with AVN when you are young? See the message below! One and a half years ago I had a hip replacement and I am young (in my early 20s). I had AVN in my left hip which progressively got worse over the course of 8 years to the point where I could
Avascular Necrosis, Hip Replacements and Sickle Cell Read More »
Can a sickle cell warrior get malaria? There is a myth pervasive in the medical and sickle cell community that for some unknown reason sickle cell gives you immunity to malaria. This is NOT true! One of the worst childhood crisis I had was when I turned 12. It was triggered by malaria, and quickly
Can Sickle Cell Patients Get Malaria? Yes, You Can! Read More »
Today I want to share something with you. It’s something I rarely talk about and that very few people know about me. But, since yesterday was my 5 year anniversary, I am overwhelmed with feelings. I can’t believe where I am in my life today and want to share my happiness with you. As
Meet Henrietta: Student, Nurse, Warrior, Transplant, Sickle-Free! Read More »
The Key to Happiness November 11, 2017 The Key to Happiness Written by: crystalmccrory32 My son has a form of sickle cell anemia that has caused him great pain and suffering throughout his life. It often impedes his physical abilities, sidelining him for important events and milestones other children seamlessly enjoy. This past year has
Happiness: The Key to Sickle Cell Read More »
Sickle Cell Disease Handbook for Patients & Families At this time, the Association of Pediatric Hematology/Oncology Nurses has developed a resource for sickle disease patients and their families. For one thing, The Sickle Cell Disease Handbook provides an overview for patients and their families on SCD. Each handbook allows parents to review it with their
Sickle Cell Disease Handbook by APHON Read More »
It’s been very hard to obtain life insurance with sickle cell disease. Here are a few tips that may get your application approved.
Life Insurance with Sickle Cell Read More »
