2014 Sickle Cell Community Gathering & Education Symposium PROGRAM AGENDA Please note that this schedule is a guideline, but times/rooms/and sessions are not set in stone. Announcements will be made if there are any changes. Always bring your journal or notebook with you. THURSDAY, JULY 17TH 8:00PM – 9:00PM WELCOME Taming the Hospital […]
Program for the SCW Gathering & Educational Symposium July 17-20 Read More »
Hey Warrior Family! We hope you are doing well. Sickle Cell Warriors, Inc. is planning the 2nd Annual Sickle Cell Community Gathering and Educational Symposium. This year it is in Atlanta, GA from July 17-20, 2014 at the DoubleTree by Hilton Hotel in Buckhead. We are delighted to invite you to attend and participate in
All About the Sickle Cell Gathering Read More »
In the last few weeks, several warriors have told me that they had other health problems besides sickle cell that was not addressed or diagnosed quickly by their physician because at first, the doctor chalked it up to being a ‘sickle cell’ complaint.
It’s NOT Always Sickle Cell Read More »
Here are the Prayer & Meditation Guidelines for the first ever 50 Hour International Day of Prayer for Sickle Cell Disease #SickleCell50
Guidelines for the Day of Prayer #SickleCell50 Read More »
It’s been a long time coming, but here is our first international challenge that focuses how we can change the world—together.
Remember at the beginning of the year when Lakiea and I promised that this year was going to be EPIC and so different from every other year of SCW? We’ve been working hard to make that happen. We are only 3 months in, and we’ve already stepped it up with the monthly challenges, January Chicago
First Quarter Update from SCW, Inc. Read More »
We received this message for Advocacy day. Although you are not in Washington DC, you can still help today. Leave a Facebook message, tweet, or email your state representatives asking them to support the Re-authorization of the Sickle Cell Treatment Act. #sicklecellTA. Read below for more details. Here is how:
Warriors, Please Act Now! #SickleCellTA Social Media Takeover to Support our Advocates! Read More »
This week’s organization in the spotlight is the Have A Heart for Sickle Anemia Foundation. Established in 1990 by the late Linda Collins it has continued on its vision to be a strong advocate and make a difference in improving the quality of life for those affected by sickle cell disease. With a web page
Organization in the Spotlight: Have A Heart for Sickle Cell Anemia Foundation Read More »
The FDA meeting is coming up on February 7, 2014 in Silver Springs, MD. Sickle cell advocates, patients, families, and members of the health care industry will all be in attendance. Even if you cannot come, your participation is necessary. It is time to use your voice. Tell the FDA how you are impacted by
I just turned in my answers to the FDA questions. A member of the SCW Facebook page said this, “What is the big deal with the FDA meeting, and why should we even try to go? Especially since most of us that have sickle cell are on a limited income, it makes no sense to
Why is the FDA Meeting on Sickle Cell Important? Read More »
