Advocacy and Activism

Help Sickle Cell Obtain the Rare Disease Pediatric Voucher

Sickle Cell Warriors, check out this pediatric voucher!!! We need your help!  Please read the letter below and  send your comment into the FDA. We have until February 16th to respond as a community. The deadline is coming up quick! The Pediatric Rare Disease Voucher Program was created for sickle cell disease, however, due to […]

Help Sickle Cell Obtain the Rare Disease Pediatric Voucher Read More »

SC Gathering & Educational Symposium Appreciation

WOOHOO!!!! We made it! The 2014 Sickle Cell Warriors Gathering is now officially over! Thank you so much for everyone who has attended and made this experience phenomenal. Lakiea & I hope that you found it extremely informative, educational, inspiring, and supportive. There are so many people to thank, so we are just going to

SC Gathering & Educational Symposium Appreciation Read More »

Program for the SCW Gathering & Educational Symposium July 17-20

2014 Sickle Cell Community Gathering & Education Symposium PROGRAM AGENDA Please note that this schedule is a guideline, but times/rooms/and sessions are not set in stone. Announcements will be made if there are any changes. Always bring your journal or notebook with you. THURSDAY, JULY 17TH   8:00PM – 9:00PM        WELCOME                                     Taming the Hospital

Program for the SCW Gathering & Educational Symposium July 17-20 Read More »

Warriors, Please Act Now! #SickleCellTA Social Media Takeover to Support our Advocates!

We received this message for Advocacy day. Although you are not in Washington DC, you can still help today. Leave a Facebook message, tweet, or email your state representatives asking them to support the Re-authorization of the Sickle Cell Treatment Act. #sicklecellTA. Read below for more details. Here is how:

Warriors, Please Act Now! #SickleCellTA Social Media Takeover to Support our Advocates! Read More »

Organization in the Spotlight: Have A Heart for Sickle Cell Anemia Foundation

This week’s organization in the spotlight is the Have A Heart for Sickle Anemia Foundation. Established in 1990 by the late Linda Collins it has continued on its vision to be a strong advocate and make a difference in improving the quality of life for those affected by sickle cell disease. With a web page

Organization in the Spotlight: Have A Heart for Sickle Cell Anemia Foundation Read More »

Shopping Cart
Scroll to Top