The Patient
I think I’m officially the only vented person that took a picture as well. What a dork!
Nicosan Trial
Today is my 2nd day of being on Nicosan. One of my readers believes so much in this medication that he ordered and shipped it to me! Thank you for that…now let’s get this guinea pig in motion. So far, I haven’t had any side effects, no sickle cell pain but I haven’t really noticed
Back from Hawaii
Wow that was such a nice vacation. I’m going to post pics soon on both Myspace and Facebook, but once I got over the ‘sickle cell’ thing it was so fun. This didn’t happen until Thursday, day 5 of 7…grrr! That was my first day that I didn’t take any painkillers whatsover. We were in
Mahalo!
The flight to Hawaii was really long, about 8 hours in total. I was worried that my sickle cell would flare up but it held up. The main thing is that I can’t go into the water as much as I would like to because my core body temperature drops when I’m immersed in water.
Flying to Hawaii
What’s good fam? I just wanted to check in before I jetsetted to Hawaii for the next week. I’ll be back by the 30th. I’m kinda nervous about the trip, mainly because I haven’t been out of the US in 8 years and also the flight is 6 hours from Cali. My last trip to
People with the Trait Have Pain Too!
This is a comment from one of my readers that is 46 that has the sickle cell trait but not the disease. Some times I have unexplained pain in one of my feet, but it’s usually only when it’s cold, and after reading some of your blogs, I see that cold weather seems to trigger
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Dealing with Sickle Cell Without Using Drugs
My daughter who is 12 years old (has SS)is thinking about taking Hydroxyurea instead of getting monthly blood transfusions. If Hydroxyurea is not right for sickle cell people what other thing can they take or do if they don’t want the blood monthly? Do you know? First of all, know that I’m not a licensed
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What’s up!
Okay, okay, it’s been a minute. I’ve been fine sickle cell wise though. Just sorting through some other issues that have me not having that much time online like I used to. Anyway, this is a shout out to one of my sickle cell warriors, Khiana! Stay strong girl and hope you get well soon.
Support Group Tonight!
Today is the sickle cell support group. I’m actually excited and looking forward to going, I feel like I’ve been waiting for them all month long. I wanna ask about the avascular necrosis and I’m supposed to take some L-Arginine over there to share with folks. It promises to be a real interesting session.
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Avascular Necrosis
I’m worried about my hips. I’ve been reading lately about avascular necrosis of the hip and the more I read about it, the more I think I have it. From what I understand, the sickling of cells causes the blocking off of tiny cappillaries, arterioles and venuoles (a sickle cell trait), which causes portions of
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