In July I have 2 trips planned, one to visit my family in Indiana and another to see my friend in Canada. I’m really excited and can’t wait, but you know I’m still filled with the trepidation that every sickle cell warrior goes through when the holiday time comes around—Am I Going to Fall Sick?
Plans and Updates Read More »
My, my, my that was a hot topic. I didn’t even know that many people read the blog. I would like to thank Anon RN and Anon Parent for stepping up to the plate and bringing this up. Personally I hate it when people assume that just because we are on narcs we must be
Re: Sickle Cell Drug Addicts Read More »
I’m a nurse in a NYC public hospital and we have a cohort of patients w/SC who I see in the ED at least everyday or every other day. The hospital has a SC clinic but when it closes the patients come to the ED. They don’t have to wait and everyone knows them. So
The Sickle Cell Drug Addicts Read More »
Okay, I just took my last pill from my first bottle, so I guess I’ve officially been on Nicosan for 30 days now. I haven’t really noticed much difference besides the fact that I don’t have as many L2s as I used to, and when I do, usually just one dose of pain meds sends
Nicosan Trials: Month One Read More »
Besides abstinence, what are the best contraceptive choices for a sickle cell warrior? For men of course that would be the condom, but for the ladies, with all the choices out there it gets a bit more complicated. You don’t want to try anything that is too heavily based on hormones, because they have a
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I got a question from a reader in Egypt that loves to swim but has a painful episode after each swimming session. For sickle cell warriors, my advice is not to swim in cold water. The main thing about swimming is that it drops your core body temperature, increasing the work load of your circulatory
Swimming with Sickle Cell Read More »
Okay, so we all know what a load of crap the medical system in the USA is. It’s even way more difficult to deal with it when you have a chronic illness like sickle cell. This is because you have to always make sure that you have insurance, because if you fall into a period
Dealing With Sickle Cell When You Don’t Have Insurance Read More »
Okay, several people have voiced concerns over me getting a crises a few days after I started taking Nicosan. I truly don’t believe that it was related or that Nicosan triggered my crises. I think that I was rundown, sick, dealing with the stress of the trip, traveling, the new job and strep throat. All
Nicosan Trial: Week One Read More »
I just got off the phone with Milan, a reader from the blog who is the absolutely most fabulous chick I’ve had the pleasure of meeting with sickle cell. She’s like a young version of me, all spunk, feisty, full of determination, attitude, sass and heart. She’s actually what I wish I was when I
Connecting With Someone With Sickle Cell Read More »
