This week's warrior is Jazzlind. She's a 15 year old full of spice and life, and she has candidly opened up about her experiences with sickle cell.
Ever wondered if you could be a working model in NY with sickle cell? If Akimie can do it, so can you!
Tosin explains how you can have a successful and happy life with sickle cell. Once we shift our mentality, we all can achieve all our goals and dreams.
The creator of the Heart of Gold foundation shares her inspirational journey with sickle cell below. Read on...
Meet Kandis, an intrepid and determined young lady. Even with AVN and sickle cell, she has accomplished all her dreams and strives to inspire others.
Hello everyone, It’s been a few months since I posted on here. First of all I need to apologize for the silence. I know that it may have been very frustrating to come here with no new updates. Since October, I’ve faced alot of challenges [continue reading...]
For those of you who haven't zeroed in on your purpose in life, this is a great exercise when you have the time. Often we have 'mental lists', but an actual physical list gives you something concrete, something that you can check off, and something [continue reading...]
Question: I am a sickle cell warrior and I’m afraid to travel to certain countries like Ukraine or China. Help! Okay, so I know that one of the main tenets of this blog is that sickle cell should not limit you. And I say that if you wish to travel to other countries, go for [continue reading...]
Have you ever thought about undergoing adult bone marrow transplant to cure your sickle cell? Here is a short testimony from a warrior who did it, and now lives sickle cell free. [continue reading...]
So to all my darling warriors that are fretting about their first long trip in a plane…here a a few tips to keep in mind. Layovers: Do you have a layover? If not, make sure that you stretch your legs periodically to prevent leg cramps. When booking, I always recommend at least one layover for [continue reading...]
Last night was my last shift at my now old hospital. I was working there for 6 months, and even though the patients were beyond crazy, and it was like working in the trenches, I really enjoyed my contract and my ‘work-cation’ in Santa Barbara. Tomorrow morning, I’m loading up the car, and driving 16+ [continue reading...]
So I just did a cross country road trip down 101. Whoever said people with sickle cell could not drive long distances obviously has never met me. I drove 997 miles from Portland, OR to Santa Barbara, CA…all by my wonderful, fabulous self! Much to the consternation of my parents, who wanted me to take [continue reading...]
Hello darlings, Do you like my spiffy new signature? I saw it and totally fell in love with it. Bonjour from the beautiful city of Toronto…I had such a blast and I can’t wait to go back. The trip was lovely—no sickness whatsoever, the people are great and it’s truly a city of multiculturism. I [continue reading...]
In July I have 2 trips planned, one to visit my family in Indiana and another to see my friend in Canada. I’m really excited and can’t wait, but you know I’m still filled with the trepidation that every sickle cell warrior goes through when the holiday time comes around—Am I Going to Fall Sick? [continue reading...]
Wow that was such a nice vacation. I’m going to post pics soon on both Myspace and Facebook, but once I got over the ‘sickle cell’ thing it was so fun. This didn’t happen until Thursday, day 5 of 7…grrr! That was my first day that I didn’t take any painkillers whatsover. We were in [continue reading...]
The flight to Hawaii was really long, about 8 hours in total. I was worried that my sickle cell would flare up but it held up. The main thing is that I can’t go into the water as much as I would like to because my core body temperature drops when I’m immersed in water. [continue reading...]
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