I write this as many warriors will be traveling soon. I have traveled extensively and frequently as a yoga teacher trainer that teaches at yoga retreats in exotic destinations. Here is what I have learned. Always see your doctor before you travel. There are many reasons for this. First, you want to be certified fit […]
How to Travel Safely with Sickle Cell Read More »
Can a sickle cell warrior get malaria? There is a myth pervasive in the medical and sickle cell community that for some unknown reason sickle cell gives you immunity to malaria. This is NOT true! One of the worst childhood crisis I had was when I turned 12. It was triggered by malaria, and quickly
Can Sickle Cell Patients Get Malaria? Yes, You Can! Read More »
The Key to Happiness November 11, 2017 The Key to Happiness Written by: crystalmccrory32 My son has a form of sickle cell anemia that has caused him great pain and suffering throughout his life. It often impedes his physical abilities, sidelining him for important events and milestones other children seamlessly enjoy. This past year has
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Sickle Cell Disease Handbook for Patients & Families At this time, the Association of Pediatric Hematology/Oncology Nurses has developed a resource for sickle disease patients and their families. For one thing, The Sickle Cell Disease Handbook provides an overview for patients and their families on SCD. Each handbook allows parents to review it with their
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Many sickle cell warriors suffer from avascular necrosis of the hip, where the bone is damaged by sickle cell blockage, leading to a prolonged limp, pain on that side of the hip and leg, and often to walk with a cane if it gets bad. You don’t have to suffer in silence. This is a
5 Tips for Managing Avascular Necrosis Read More »
This week was a sad week for my family because after twenty years, I have decided to transfer to another hospital for the medical care for my 8 year old Sickle Cell warrior. Knowing that everyone on your child’s medical team has your family’s best interest is one of the greatest components. However, when you
Who’s Really On Your Sickle Cell Team? Read More »
RN Tosin Ola Answers Your Sickle Cell Questions Interview with Tom Joyner In this interview with Tom Joyner, check out our Founder, Tosin Ola’s interview on his radio show. Repping for Sickle Cell all the time. In addition, consider telling others. Awareness is integral and we all must do our part. Love your support Warrior
Interview with Tom Joyner: Get Well Wednesday Read More »
As parents of warriors, we must always be alert when managing our babies’ Sickle Cell disease. Recently, I had another eye-opening experience while dealing with doctors after my warrior temporarily lost her vision twice. The doctors immediately admitted her and gave her a blood transfusion. Next, they ran all kinds of tests and did a
Don’t Be Bullied by Doctors! Read More »
What happens when your newborn has sickle cell? Most people are excited to bring a bundle of joy into the world. As a mom, you love them from the moment you feel that first burst of life moving in your belly. But what happens when the doctors tell you your baby may or may not
So My Newborn Has Sickle Cell…What Now? Read More »
