Many of us with sickle cell suffer from avascular necrosis of the hip, where the bone is damaged by sickle cell blockage, leading to a prolonged limp, pain on that side of the hip and leg, and often to walk with a cane if it gets bad. You don’t have
This week was a sad week for my family because after twenty years, I have decided to transfer to another hospital for the medical care for my 8 year old Sickle Cell warrior. Knowing that everyone on your child’s medical team has your family’s best interest is one of the
Hey Warrior Fam, Check out our Founder, Tosin Ola’s interview with the Tom Joyner radio show. Repping for Sickle Cell all the time. Awareness is integral and we all must do our part. Tosin Ola, BSN, RN knows firsthand the challenges of living with sickle-cell disease. The practicing registered nurse,
As parents of warriors, we must always be alert when managing our babies’ Sickle Cell disease. Recently, I had another eye-opening experience while dealing with doctors after my warrior temporarily lost her vision twice. The doctors immediately admitted her and gave her a blood transfusion. Next, they ran all kinds
Most people are excited to bring a bundle of joy into the world. As a mom, you love them from the moment you feel that first burst of life moving in your belly. But what happens when the doctors tell you that your baby may or may not have Sickle
Here is another excellent resource dedicated to sickle cell disease. Gary Gibson, President of the Martin Center Sickle Cell Initiative has been hosting this amazing show for the last few months. Tune in every Tuesday, 1pm PST/4pm EST to get your latest news and happenings in the sickle cell community,
As most parents know, many children can be picky eaters and getting them to eat their fruits and vegetables has challenged parents for many decades. Especially for those youngsters diagnosed with SCD (Sickle Cell Disease), it is often associated with low calcium intake, vitamin D deficiency and a poor appetite,
I don’t think so! I have been very compliant. I am so frustrated. I had surgery almost 5 weeks ago. It’s been terrible. I had surgery on my left arm. All I can do is keep it elevated. I can’t cook, clean, knit, crochet or do anything I would like
Sickle Cell has had a major negative effect in my finances for the last 6 years. Many people don’t pay attention to how this struggle is and how doing it as a single parent makes it almost impossible. Be straight with yourself and assess where your faith is right now
Being the parents of a Sickle Cell Warrior (SCW), we know giving up is never an option. Even when we don’t receive the needed support to get through each crisis, we can never lose hope or our smile. Your child survives merely through the pain from your strength/smile. But who
When I became vegetarian 28 years ago it wasn’t something I really thought about. However, it was the best decision I ever made. I had been very ill for a long time. I joked that I personally built the new wing on the hospital. I got out of the hospital
Hey Warrior Family! We hope you are doing well. Sickle Cell Warriors, Inc. is planning the 2nd Annual Sickle Cell Community Gathering and Educational Symposium. This year it is in Atlanta, GA from July 17-20, 2014 at the DoubleTree by Hilton Hotel in Buckhead. We are delighted to invite you
In the last few weeks, several warriors have told me that they had other health problems besides sickle cell that was not addressed or diagnosed quickly by their physician because at first, the doctor chalked it up to being a ‘sickle cell’ complaint.
As a parent, what you say matters. ElleJanae shares a secret to keeping her well of faith full.
Our message at SCW is that you can still live a vibrant, amazing life with sickle cell disease. Here is a post from 40 year old Ty, a warrior who has learned to live well with sickle cell!