Sickle Cell Warriors

Tag "Coping Strategies"

    World Sickle Cell Day 2018

World Sickle Cell Day 2018

Hello Warrior Family! Don’t forget, today, Tuesday June 19th is World Sickle Cell Day. This was specially designated by the World Health Organization in 2009 to improve the education, research, and awareness of sickle cell disease on a global scale. For us warriors, it is like your sickle cell birthday!!! We

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    SCD Adult Support Groups in Southern California

SCD Adult Support Groups in Southern California

California Warriors, great news! Cayenne Wellness is now hosting monthly support group meetings in Fresno, San Diego, Los Angles, Loma Linda, and Antelope Valley. You get to meet others with SCD and get valuable info about improving your health. You also gain an understanding how others cope with SCD, share

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    How to Travel Safely with Sickle Cell April Farrell-Hasty

How to Travel Safely with Sickle Cell April Farrell-Hasty

I write this as many warriors will be traveling soon. I have traveled extensively and frequently as a yoga teacher trainer that teaches at yoga retreats in exotic destinations. Here is what I have learned. Always see your doctor before you travel.  There are many reasons for this. First, you

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    Can Sickle Cell Patients Get Malaria? Yes, You Can!

Can Sickle Cell Patients Get Malaria? Yes, You Can!

Can a sickle cell warrior get malaria? There is a myth pervasive in the medical and sickle cell community that for some unknown reason sickle cell gives you immunity to malaria. This is NOT true! One of the worst childhood crisis I had was when I turned 12. It was

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    Sickle Cell and the Key to Happiness

Sickle Cell and the Key to Happiness

The Key to Happiness November 11, 2017  Written by: crystalmccrory32 My son has a form of sickle cell anemia that has caused him great pain and suffering throughout his life. It often impedes his physical abilities, sidelining him for important events and milestones other children seamlessly enjoy.  This past year

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    Sickle Cell Disease Handbook by APHON

Sickle Cell Disease Handbook by APHON

Sickle Cell Disease Handbook for Patients & Families The Association of Pediatric Hematology/Oncology Nurses has developed a resource for sickle disease patients and their families. The Sickle Cell Disease Handbook provides an overview for patients and their families on SCD. Each handbook is written at the 6th grade level allowing parents to

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    Tips to Prevent Sickle Cell Crisis in the Summer

Tips to Prevent Sickle Cell Crisis in the Summer

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    5 Tips for Managing Avascular Necrosis in Sickle Cell

5 Tips for Managing Avascular Necrosis in Sickle Cell

Many of us with sickle cell suffer from avascular necrosis of the hip, where the bone is damaged by sickle cell blockage, leading to a prolonged limp, pain on that side of the hip and leg, and often to walk with a cane if it gets bad. You don’t have

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Who’s Really On Your Team?

This week was a sad week for my family because after twenty years, I have decided to transfer to another hospital for the medical care for my 8 year old Sickle Cell warrior.  Knowing that everyone on your child’s medical team has your family’s best interest is one of the

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Get Well Wednesday: RN Tosin Ola Answers Your Sickle Cell Questions

Hey Warrior Fam, Check out our Founder, Tosin Ola’s interview with the Tom Joyner radio show. Repping for Sickle Cell all the time. Awareness is integral and we all must do our part. Tosin Ola, BSN, RN knows firsthand the challenges of living with sickle-cell disease. The practicing registered nurse,

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    Don’t Be Bullied!

Don’t Be Bullied!

As parents of warriors, we must always be alert when managing our babies’ Sickle Cell disease.  Recently, I had another eye-opening experience while dealing with doctors after my warrior temporarily lost her vision twice.  The doctors immediately admitted her and gave her a blood transfusion.  Next, they ran all kinds

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    So My Newborn Has Sickle Cell…What Now?

So My Newborn Has Sickle Cell…What Now?

Most people are excited to bring a bundle of joy into the world.  As a mom, you love them from the moment you feel that first burst of life moving in your belly.  But what happens when the doctors tell you that your baby may or may not have Sickle

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    Sickle Cell Action Network at 1pm PST Tuesdays

Sickle Cell Action Network at 1pm PST Tuesdays

Here is another excellent  resource dedicated to sickle cell disease. Gary Gibson, President of the Martin Center Sickle Cell Initiative has been hosting this amazing show for the last few months. Tune in every Tuesday, 1pm PST/4pm EST to get your latest news and happenings in the sickle cell community,

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    Getting A Child With Sickle Cell Anemia To Eat Healthy

Getting A Child With Sickle Cell Anemia To Eat Healthy

As most parents know, many children can be picky eaters and getting them to eat their fruits and vegetables has challenged parents for many decades. Especially for those youngsters diagnosed with SCD (Sickle Cell Disease), it is often associated with low calcium intake, vitamin D deficiency and a poor appetite,

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    Am I The Worst Patient?

Am I The Worst Patient?

I don’t think so! I have been very compliant. I am so frustrated. I had surgery almost 5 weeks ago. It’s been terrible. I had surgery on my left arm. All I can do is keep it elevated. I can’t cook, clean, knit, crochet or do anything I would like

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