By Tosin Ola, RN, BSN, MBA-HCM, Founder & President, Sickle Cell Warriors Foundation. The U.S. Food and Drug Administration’s decision on mitapivat, a pill for sickle cell disease, is due November 1, 2026. Mitapivat is not a cure. In Phase 3 trials, however, it raised hemoglobin levels — and for people living crisis to crisis,
Mitapivat Decision Due November 1: A Pill, Not a Cure — But a Step Forward Read More »
By Tosin Ola, RN, BSN, MBA-HCM, Founder & President, Sickle Cell Warriors Foundation. A study from Conakry, Guinea, has found hydroxyurea linked to fewer sickle cell crises — welcome evidence from a region where sickle cell disease affects so many families, and where access to treatment is often limited. The study followed 102 patients and
Hydroxyurea Linked to Fewer Crises in Guinea: What a 102-Patient Study Shows Read More »
10th Annual Sickle Cell Disease Therapeutics Conference September 15, 2021 9 am – 4 pm EST Visit the SCW Facebook page to join the GBT Livestream Sickle Cell Warriors, Inc. (SCW) and (Global Blood Therapeutics) GBT partner to host the annual Livestream of the 2021 Sickle Cell Disease Therapeutics Conference (SCDTC). Firstly, learn about the
SCW & GBT Livestream Read More »
Vertex and CRISPR Therapeutics Present New Data in 22 Patients With Greater Than 3 Months Follow-Up Post-Treatment With Investigational CRISPR/Cas9 Gene-Editing Therapy, CTX001™ at European Hematology Association Annual Meeting – Beta thalassemia: All 15 patients were transfusion independent after CTX001 infusion – – Sickle cell disease: All seven patients were free of vaso-occlusive crises after
New data for Vertex and CRISPR Therapeutics Read More »
Depression and Kids with SCA Older age and higher education level showed increased scores. “A new study from Nigeria found that depression in young patients with sickle cell disease (SCD) was linked with increasing age and education level.” There is a new Nigerian study with teens and children who have sickle cell anemia (SCA). The
Pediatric Depression in SC Read More »
The Sickle Cell Disease Coalition (SCDC), is developing fact sheets on sickle cell disease (SCD) therapies for the community and would appreciate your help reviewing the draft resources. As background, the SCDC formed to amplify the voice of the SCD stakeholder community to improve outcomes for individuals with SCD and Sickle Cell Warriors, Inc. is a
Survey: Draft Fact Sheets on SCD Therapies Read More »
pre-register and watch the sickle cell disease therapeutics conference here live sickle cell disease awareness month warriors
Register for SCDTC LiveStream Read More »
All Patients Enrolled in Phase 3 HOPE Study Showing Statistically Significant and Sustained Improvements in Hemoglobin with Voxelotor Global Blood Therapeutics, Inc. (GBT) today announced new results from its Phase 3 HOPE Study of voxelotor in patients ages 12 and older with sickle cell disease (SCD). The findings from 274 adolescents and adults treated with
GBT Announces Updated 24-Week Efficacy Data Read More »
Hello everyone, Patients all over the world struggling with sickle cell disease often go to the hospital when they are in a crisis and receive poor medical care from healthcare workers who have little to no knowledge of SCD. This has got to stop. In this section, we will be featuring real stories from sickle
Rainy Lake Medical Center, International Falls, MN – Negative Review Read More »
**Due to a production issue Endari is not currently available, but as soon as becomes available we will post it up on the website. Hello everyone, great news! Endari is available as of December 17. Endari is a concentrated form of L-Glutamine. Its formuls is for sickle cell disease. When taken as directed, it has
Sickle Cell and Endari Read More »
