Sports Screening for SC Trait
Is sports screening for sickle cell trait a step in the right direction? Check out this video, and let us know your thoughts, either in the comments section or make/tag a video.
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Videos
Flight Details
The good news: No crisis in the middle of my flight! YAY! The bad news…I was sick for a few days, but all is well now. Get the gist of Tosin’s airplane trip to Nigeria here.
Lifespan Predictions for Sickle Cell
Remember when the doctor told you or your parents that you should only live until 6…then it was 18…then it was 30? Well you have reached and passed that age, and you are still alive! So say NO! to the limitations placed on you by others…and the ‘recommended’ age that the doctor or CDC wants
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Hallucinations and Sickle Cell
When life gives you lemons, make lemonade. Share your hallucination story and let’s all have a laugh together.
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Stress, Travel and Oxygen…
Short video about travel tips, stress and getting oxygen while on a plane.
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Advice to Med Professionals: LISTEN!!
I can’t stress this enough: many people fail to realize how painful sickle cell is. Doctors, nurses etc. please take note… Heather Davis, a sickle cell patient, talks about the stigma from her point of view. Dr Stojan discusses how sickle cell challenges the health care system…and the stereotypes that sickle cell patients face.
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Supporting Someone Through a Sickle Cell Crises
To the caregivers, family, friends and spouses of sickle cell warriors, many wonder how to cope and deal when their loved one is in pain. People deal with it differently: some shut down, some stare, some ignore you writhing in agony. Tosin Coker has created a wonderful video blog on a sickle cell warriors’ perspective
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Meet Elise
Meet Elise: a beautiful, eloquent SCD warrior bravely sharing her story of the struggles of dealing with sickle cell.
Video:Ports, Catheters & IVs
video on some of the most common intravenous accesses sickle cell patients have
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Do Not Call me a Sickler!!!
Tosin explains why the word ‘sickler’ is an anathema to her. Words have power. Do not allow a word to limit your dreams, aspirations and potential.
Do Not Call me a Sickler!!! Read More »