SC News and Research Archives - Page 5 of 17

CDC Issues Key Clarification on Guideline for Prescribing Opiods for Chronic Pain

The Centers for Disease Control and Prevention (CDC) released clarification on prescribing opioids to manage pain for certain conditions. The clarification, regarding CDC’s Guideline for Prescribing Opioids for Chronic Pain– issued in a letter from the agency to the American Society of Clinical Oncology (ASCO), the American Society of Hematology (ASH), and the National Comprehensive Cancer […]

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ASH is Seeking Feedback on Two New SCD Guidelines on Pain and Transplantation

SC News and Research / Brooke Pillifant

The American Society of Hematology (ASH) is seeking public comments on two draft clinical practice guidelines: sickle cell disease (SCD)-related pain, and SCD-related transplantation. The deadline for comments is May 13, 2019 and related materials can be found on the ASH Website. In 2018, the first three of ASH’s series of five SCD guidelines opened for public

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SCD Cure through Stem Cell Transplant

Living with Sickle Cell, SC News and Research / Brooke Pillifant

Exciting news!! Akshat Jain, MD, Director of Pediatric Hematology-Oncology at Loma Linda University Children’s Hospital and his team cures a Sickle Cell Disease patient through their first stem cell transplant. On behalf of Sickle Cell Warriors, a huge congratulations to Dr. Jain and his entire team! Click here to read the entire article.

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SC and CBS 60 Minutes

Living with Sickle Cell, SC News and Research / Brooke Pillifant

On Sunday, March 10 at 7:00 p.m. ET, NIH Director Dr. Francis Collins and NIH senior investigator Dr. John Tisdale will be part of a CBS 60 Minutes segment on the search for better treatments and a cure for sickle cell disease. The segment captures Dr. Tisdale’s clinical trial at the NIH Clinical Center where he and his team are using gene therapy

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Progress in Gene-Editing Therapy

Living with Sickle Cell, SC News and Research / Brooke Pillifant

Exciting news! CRISPR Therapeutics and Vertex Announce Progress in Clinical Development Programs for the Investigational CRISPR/Cas9 Gene-Editing Therapy CTX001. They have dosed the first patient with sickle cell Disease. To find more about this research, ask your doctor. More hope is on the horizon! Read the press release to learn more.

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Rare Disease Day Countdown!

Advocacy and Activism, Living with Sickle Cell, Newest Features, SC News and Research, Uncategorized / SC Warrior

Hello warriors! We have just over a week until February 28th, which is Rare Disease Day! In the US, a rare disease is defined as one that affects a minor population of less than 200,000 people. Sickle cell disease falls under the collective umbrella of Rare Diseases, so its another great opportunity to spread the

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Get the Match Livestream

Advocacy and Activism, Living with Sickle Cell, SC News and Research / Brooke Pillifant

Get the Match Livestream September 28 1 pm – 4 pm PST (8:00 pm – 11 pm GMT) There is a point in which all of us living with SCD will consider undergoing a bone marrow transplant to see if it can help our condition. Although there have been success stories, it’s important to educate

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Sickle Cell Disease Therapeutics Conference

Living with Sickle Cell, SC News and Research / Brooke Pillifant

Annual Sickle Cell Disease Therapeutics Conference September 13, 2018 GBT will host the 7th Annual Sickle Cell Disease Therapeutics Conference (SCDTC) at the Park Central Hotel in New York City on September 13, 2018. This annual meeting brings together healthcare professionals, patients, community based organizations and advocates, investors, policy makers and industry representatives. They will

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No More Lifespans!

Advocacy and Activism, Living with Sickle Cell, SC News and Research, Videos / Brooke Pillifant

Join Tosin in this video. Learn to disregard the number your doctor gave you about your lifespan. Join her in saying, “No more lifespans!”

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7th Annual Sickle Cell Disease Therapeutics Conference

Advocacy and Activism, Living with Sickle Cell, SC News and Research / Brooke Pillifant

The 7th Sickle Cell Disease Therapeutics Conference is a meeting to find the latest news and trends in the SC world. Also, people will hear from new industry leaders, patients, physicians, CBOs and biotech companies. For more information about the day, email scdconference@gmail.com Apart from this, click here to register. Hear from the President and

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