On Sunday, March 10 at 7:00 p.m. ET, NIH Director Dr. Francis Collins and NIH senior investigator Dr. John Tisdale will be part of a CBS 60 Minutes segment on the search for better treatments and a cure for sickle cell disease. The segment captures Dr. Tisdale’s clinical trial at the NIH Clinical Center where he and his team are using gene therapy
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Exciting news! CRISPR Therapeutics and Vertex Announce Progress in Clinical Development Programs for the Investigational CRISPR/Cas9 Gene-Editing Therapy CTX001. They have dosed the first patient with sickle cell Disease. To find more about this research, ask your doctor. More hope is on the horizon! Read the press release to learn more.
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What is this? The American Society of Gene & Cell Therapy (ASGCT) is proud to announce the first release of the Society’s Patient Education program, a new initiative for 2019. The new patient-centered portal is designed by ASGCT committee volunteers in coordination with patient advocacy groups to educate and inform patients, families, and the general
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PAULO ANDRÉ CHENSO is a doctor and professor in London. He created a “MANUAL FOR LIFE”. IT’S WORTH A READ AND TO PUT IN PRACTICE. IN THE HEALTH: 01. Drink a lot of water. 02. Eat more what is born in trees and plants. 03. Live with the 3 E’s Energy. Enthusiasm and Empathy 04.
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Dear Sickle Cell Community, Join a 5-week webinar series on the topic “Blood Transfusions: What You Need to Know and Do”. The interactive series will include in-depth information on blood matching, iron overload, blood donations, and patient-provider communication techniques/skills. Register here for the educational series: https://ghpc.wufoo.com/forms/the-warrior-university-online-series/ *Registry and Education for Hemoglobinopathies and Hemovigilance/Transfusion Therapy in Georgia
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Holistic Health and Sickle Cell Disease: A focus on Mental and Behavioral Health Thursday, February 28, 2019 1:00 – 2:15 pm EST Register Here Sickle cell disease (SCD) affects millions globally, disproportionately impacting certain racial and ethnic minority populations, including African Americans, Latinos and people of Middle Eastern, Indian, Asian and Mediterranean descent. According to
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Join The Heart Truth’s Facebook Live at noon EST on Tuesday, February 26 to see how heart healthy cooking can be fun, especially when you do it together! We’re over halfway through American Heart Month 2019! This month, we have been focusing on how #OurHearts stay heart healthy at work, with our friends and family, and in
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Hello warriors! We have just over a week until February 28th, which is Rare Disease Day! In the US, a rare disease is defined as one that affects a minor population of less than 200,000 people. Sickle cell disease falls under the collective umbrella of Rare Diseases, so its another great opportunity to spread the
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