There is a great discussion over at the Ning Sickle cell board over coping when you are in the hospital in pain and doctors don’t believe your pain and ask you what your doses of pain meds are, and when you tell them, they respond “Oh that’s too high, that can’t be right, I’m only […]
In the Hospital in PainCop Read More »
Hello! What’s up everyone? I’m still here, chilling in Portland, enjoying wonderfully beautiful summer days. For the 4th, of course I hit up the waterfront and did the fireworks thing…it wasn’t as spectacular as last year (dratted economic crises!), but it was decent. When I was leaving my house that hot summer afternoon, my friend
Hello everyone! How are you enjoying the summer? I’m doing great, having all kinds of fun in beautiful Portland. Summer is the only time that it’s beautiful and not raining in Portland, so I might as well savor it right? I’ve started my exercise regimen again and this time I’m super dedicated. I’m doing a
Last night was my last shift at my now old hospital. I was working there for 6 months, and even though the patients were beyond crazy, and it was like working in the trenches, I really enjoyed my contract and my ‘work-cation’ in Santa Barbara. Tomorrow morning, I’m loading up the car, and driving 16+
Okay, let’s talk Alternative therapies. I had a list HERE on recommended alternative herbal remedies for sickle cell. Well almost a year has passed by since then, and I’ve been told and have remembered a few more. Carao fruit: One of my Brazilian readers mentioned this. Apparently, she has been giving carao to her daughter
Alternative Therapies Read More »
Hello darlings, I’m back in action! Oh yeah baby!!!:) Seriously though, being sick totally sucks. I don’t want to have another crises for a loooooong, looooooooong time. I’m not even shooting for a year anymore, I just wanna be 100% crises free. So my visit to the ED totally sucked as usual. I really wish
And the War Goes On… Read More »
Where do I begin? I’m living in Santa Barbara, the site where the Jesusita fires were burning fiercely a mere 2 days ago. Thankfully the fires have now been contained. It started last Monday, and by Thursday, the fires were raging out the control, the city evacuated. Heads up, if you ever have sickle cell
There seems to be some hope on the horizon for Nicosan. I can’t go into details yet, but I will once the changes have all been confirmed. I knew that you guys had intercessory prayer mojo backing us up! What warrior doesn’t?
Hello darlings, In the interest of full disclosure, I must state that I had pain this week. I actually had to call off of work on April 1st. The pains started as they normally did, twinges here and there, L1s, nothing major, and I ignored them, thinking it was a fluke and would just go
April Fools Joke..not cool Read More »
This letter just brought it home for me…all the stress that I’ve been going through getting Nicosan to my dear users in the US. It’s been difficult maintaining with all the business and economic setbacks both here and in Nigeria, but this note from a Nicosan user just reminded me why I love what I
