Advocacy and Activism

This section focuses on news in advocacy and activism for sickle cell disease. Get the latest on actionable legislative actions, state advocacy efforts, local, national, and global campaigns to improve care and the lives of those with SCD. We need your voice. Get involved, sign a petition, use your network, call your house representatives and senators, share your story, and make an impact.

Get Well Wednesday: RN Tosin Ola Answers Your Sickle Cell Questions

Hey Warrior Fam, Check out our Founder, Tosin Ola's interview with the Tom Joyner radio show. Repping for Sickle Cell all the time. Awareness is...

Sickle Cell Action Network at 1pm PST Tuesdays

Here is another excellent  resource dedicated to sickle cell disease. Gary Gibson, President of the Martin Center Sickle Cell Initiative has been hosting this...

Sickle Cell Warrior Heather on Dr. Phil Show

One of our esteemed Warriors in the Spotlight, Heather Avant was featured on the Dr. Phil show on December 17, 2015. She talks about how...

Bi-Annual Update of Sickle Cell Warriors™

Hello Warrior Family! This letter is a year late but I finally finished it. Apologies for the delay. Read on and you will see why... It's...

World Sickle Cell Day Activities!!!

Hello everyone! As you probably know, World Sickle Cell Day is around the corner on June 19th! This was established by the World Health Organization...

Help Sickle Cell Obtain the Rare Disease Pediatric Voucher

Sickle Cell Warriors!!! We need your help!  Please read the letter below and  send your comment into the FDA. We have until February 16th to...

SC Gathering & Educational Symposium Appreciation

WOOHOO!!!! We made it! The 2014 Sickle Cell Warriors Gathering is now officially over! Thank you so much for everyone who has attended and made...

Program for the SCW Gathering & Educational Symposium July 17-20

2014 Sickle Cell Community Gathering & Education Symposium PROGRAM AGENDA Please note that this schedule is a guideline, but times/rooms/and sessions are not set in stone. Announcements...

All About the Sickle Cell Gathering

Hey Warrior Family! We hope you are doing well. Sickle Cell Warriors, Inc. is planning the 2nd Annual Sickle Cell Community Gathering and Educational Symposium. This...

It’s NOT Always Sickle Cell

In the last few weeks, several warriors have told me that they had other health problems besides sickle cell that was not addressed or diagnosed quickly by their physician because at first, the doctor chalked it up to being a 'sickle cell' complaint.
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