Advocacy and Activism

Celebrating Black History Month poster

Black History Month Midwives 2022

Did You Know: Black Midwives Most midwives, including enslaved women, drew upon traditional healing knowledge and practices passed down through generations. Throughout the years, despite efforts to marginalize them by the medical establishment, Black midwives have continued to play a critical role in delivering babies and training the next generation of Black birthworkers. This #BlackHistoryMonth […]

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A DNA strand inside a laboratory tube

Public Meeting: FDA Rare Disease Day 2022

FDA will host a virtual public meeting on March 4, 2022, 9:00 am to 4:30 pm EST, to join the global observance of Rare Disease Day. The theme for FDA’s Rare Disease Day is “Sharing Experiences in Rare Diseases Together.” During the meeting, various stakeholders will share their perspectives on and experiences in rare disease product development. Please visit the public meeting page to register for the event. If you are a

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Black History Month Mothers & Children 2022

The Impact of Institutional Racism on Maternal and Child Health Understanding the history associated with the persistent health disparities impacting the Black community is a vital step toward dismantling policies and practices that continue to adversely affect Black maternal and child health outcomes. Institutional racism—racism that began with the enslavement of Black people—was embedded in

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Sickle Cell Warriors Inc

ASGCT Advocacy Update

Newborn Screening Advocacy Succeeds in Georgia Earlier this month, Georgia Governor Brian Kemp signed HB 567 [ https://www.legis.ga.gov/legislation/59896 ] into law, which will require the state to consider new federal newborn screening (NBS) recommendations within one year, implement them within two and a half years, and provide appropriate funding for the NBS program. ASGCT supported the bill

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SC Warrior Death due to Hospital Negligence

Sickle Cell Warrior Death Inquest Reveals Gross Negligence in Hospital This makes me so mad.  Rest Pain-free Mr. Evan Smith, Your death will not be in vain, you will save many warriors, I promise. Shame on you North Middlesex Hospital. All their excuses don’t matter. This young man lost his life due to poor medical

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