A friend on the Ning Sickle Cell forum is working with doctors at Johns Hopkins to develop training for medical students on sickle cell treatment & care. They want to know what issues we’re having with health care treatment. This is our chance to get on the soapbox and let our voices be heard. So […]
Informational Release from Xechem Nigeria. This is old, but I just came across it so I figured it would help some answer all their questions. NICOSAN™ is a non-toxic, Phyto-pharmaceutical, product for the treatment of Sickle Cell Disease (SCD). NicosanTM is obtained from the mixture of four Nigerian plant materials e.g. Piper guineese (Seeds), Pterocarpus
Information about Nicosan Read More »
Okay, for starters I’ve learned the hard way that it’s always good to tell your job that you have sickle cell BEFORE you end up in the hospital for a week. I used to work as a personal assistant, and it was a great job that used my organizational capabilities to the max! I fell
Telling Your Job You Have Sickle Cell Read More »
On the Sickle cell Ning forum, there is a great discussion about the crazy things that Sickle Cell Warriors say while they are on narcotics. Personally that hasn’t happened to me in a while, but I do remember the days of horrendous hallucinations and crazy conversations. Whoever was at my bedside at the moment bore
The Crazy Things I Say with Narcotics Read More »
As a transcontinental transplant, I experienced alot of dramatic changes in how I was treated as a sickle cell patient in Nigeria vs my treatment in America. Those of you who have read the archives know that although I was born in Nigeria, I only lived there from birth to 4 years old, and then
Being Sick in Nigeria vs Sick in America Read More »
Nicosan is referenced on the Mayo Clinic website. We’re moving on up! Check it on the end here
Mayo Clinic on Nicosan Read More »
There is a great discussion over at the Ning Sickle cell board over coping when you are in the hospital in pain and doctors don’t believe your pain and ask you what your doses of pain meds are, and when you tell them, they respond “Oh that’s too high, that can’t be right, I’m only
In the Hospital in PainCop Read More »
A new study shows that the annual cost of medical care in the US forpeople who suffer from sickle cell disease exceeds $1.1 billion. Check out the full article HERE. They report that the average total cost of care per month per patient was $1,946, with substantial variation across age groups. Total costs per patient-month
Sickle Cell costs $$$ Read More »
Hello! What’s up everyone? I’m still here, chilling in Portland, enjoying wonderfully beautiful summer days. For the 4th, of course I hit up the waterfront and did the fireworks thing…it wasn’t as spectacular as last year (dratted economic crises!), but it was decent. When I was leaving my house that hot summer afternoon, my friend
Hello everyone! How are you enjoying the summer? I’m doing great, having all kinds of fun in beautiful Portland. Summer is the only time that it’s beautiful and not raining in Portland, so I might as well savor it right? I’ve started my exercise regimen again and this time I’m super dedicated. I’m doing a
