a community of those living, loving and surviving Sickle Cell Disease
Meet Jazzlind: Daughter, Student, Girlfriend, Warrior
Meet Jazzlind: Daughter, Student, Girlfriend,…
Posted 59 days ago

This week's warrior is Jazzlind. She's a 15 year old full of spice and life, and she has candidly opened up about her experiences with sickle cell.

Meet Jazzlind: Daughter, Student, Girlfriend,…
Meet Akimie: Artist, Runway Model, Warrior
Meet Akimie: Artist, Runway Model, Warrior
Posted 86 days ago

Ever wondered if you could be a working model in NY with sickle cell? If Akimie can do it, so can you!

Meet Akimie: Artist, Runway Model, Warrior
Success Begins with You!
Success Begins with You!
Posted 89 days ago

Tosin explains how you can have a successful and happy life with sickle cell. Once we shift our mentality, we all can achieve all our goals and dreams.

Success Begins with You!
Meet Clarissa: The Warrior Behind of HeartofGold.org
Meet Clarissa: The Warrior Behind of HeartofG…
Posted 89 days ago

The creator of the Heart of Gold foundation shares her inspirational journey with sickle cell below. Read on...

Meet Clarissa: The Warrior Behind of HeartofG…
Meet Kandis: Mom, Nurse and Warrior
Meet Kandis: Mom, Nurse and Warrior
Posted 90 days ago

Meet Kandis, an intrepid and determined young lady. Even with AVN and sickle cell, she has accomplished all her dreams and strives to inspire others.

Meet Kandis: Mom, Nurse and Warrior
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Tosin's Corner

Checking In…

Checking In…

Hello everyone, It’s been a few months since I posted on here. First of all I need to apologize for the silence. I know that it may have been very frustrating to come here with no new updates. Since October, I’ve faced alot of challenges [continue reading...]

Setting Goals

Setting Goals

For those of you who haven't zeroed in on your purpose in life, this is a great exercise when you have the time. Often we have 'mental lists', but an actual physical list gives you something concrete, something that you can check off, and something [continue reading...]

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Posts Tagged ‘Nicosan’

Open Letter to Nexim, Diamond Bank and Bank PHB

Open Letter to Nexim, Diamond Bank and Bank PHB

Open letter to the banks in Nigeria holding up Nicosan production: Please forward and paste over the internet. Thanks. [continue reading...]

Letters Needed for Nicosan

Letters Needed for Nicosan

Hello everyone, As I’m writing this, I’m having my first pain crises in over a year. I ran out of Nicosan last week, and I got slammed with pain today. So. Not. Fun. I’d almost forgotten how all encompassing a sickle cell crises is. I was relishing my new lease on life only to get [continue reading...]

Today’s Post

Today’s Post

Hello everyone, This year, I want to start a spotlight series for people with sickle cell all over the world. It will be a weekly thing, and I will just send an email with questions for you to answer. I know from the feed reader that we have readers from Zambia, Nigeria, India, UK, China, [continue reading...]

Nicosan Rising

Nicosan Rising

Okay, so ever since I wrote the Nicosan Woes post, I’ve gotten several people wanting to know what’s the new scoop on Xechem. I’ve kept my ears to the ground, and after emailing a few great Nicosan friends and supporters, have found out that things seem to be looking better and brighter for Nicosan. I [continue reading...]

Nicosan Testimonial

Nicosan Testimonial

One of my readers who has been on Nicosan for about a year now, has written this wonderful review that I would like to share with everyone. If anyone else has a Nicosan story that they would love to share; good, bad or indifferent; please send it my way. Also, if you would like to [continue reading...]

Taking Nicosan and Hydroxyurea

Taking Nicosan and Hydroxyurea

I got a question today that I couldn’t answer. Has anyone taken Nicosan WITH Hydroxyurea? Did you notice a difference? Have you had any side effects? Please share your story, either via comments or through my email. Thanks! [continue reading...]

Nicosan and Lab Levels

Nicosan and Lab Levels

Questions: How long does Nicosan take to boost the HB level? Do you have a patients record or blood test results where I can actual see the improvements? Answer: It took me about 3 months before my Hgb got a boost, but even then, I just went from my normal baseline of 8.5 to 10.6. [continue reading...]

Nicosan and Tylenol

Nicosan and Tylenol

I ordered some for my fiancé and noticed it says u have to be careful when taking it with Tylenol. Which is in about every pain med used except a couple. What problems can you have using Tylenol and Nicosan together do u know? I know you aren’t a doctor but if you know anything [continue reading...]

Nicosan Skeptics—I need your story!

Nicosan Skeptics—I need your story!

I got a question from one of my readers that I couldn’t answer. I used to be a skeptic and require facts, figures and statistics; but I think I’m too much of a Nicosan believer to be able to answer this. My baby is also on NICOSAN. Can’t dream of taking her off it!!!! My [continue reading...]

Nicosan Tingles

Nicosan Tingles

The next few days, I’ll be posting answers and questions that I’ve been getting from my darling readers about Nicosan and Sickle cell. I seem to be getting alot of similar questions, so I figure if I post them here, more people can learn from the same group of questions. If you have any advice, [continue reading...]

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Highlighted SC Events

  • Worldwide: UN Sickle Cell Awareness Day!! on 06/19/2012
    in 31 days and 09:42 hours.

Featured Warrior

Interview with a Medical Doctor with Sickle Cell Disease

Interview with a Medical Doctor with Sickle Cell Disease

Ever wondered if you could be a doctor with sickle cell? Well you can follow that dream. Dr. Y. explains to us how she went through medical school and became a physician. [continue reading...]

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