Sickle Cell Warriors

Tag "Advocacy and Activism"

Please VOTE: Teen Tries to Raise Money for SCD

Vote to grant 25K from Pepsi in which a portion goes directly to sickle cell patients and their families.

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President Obama Welcomes a SC Warrior

A 14 year old sickle cell warrior got to meet the President this week. How cool is that?

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Starting a Sickle Cell Movement in Your ‘Hood

There are so many ways to get involved with sickle cell. For those of you wanting to start your own group, here are a few ideas to get you started

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June 19th is World Sickle Cell Day!

What are your plans to celebrate World Sickle Cell Day? I hope you have some…if not…get some!

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How to Join Sickle Cell Trials & Studies

Have you ever wanted to enroll or participate in a research study or program involving sickle cell and didn’t know where to start?

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Sickle Cell Award

Award from AccessDNA on raising awareness for sickle cell

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Sickle Cell Advocacy & Activism

This week, I got a chance to speak with Phyllis Thomas, the founder of the SCD Soldiers Network which is an Advocacy Group for Adults with Sickle Cell Disease (AGASCA). The SCD Soldier Network enables the sickle cell community to be advocates for each other. The beautiful part of this

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Sickle Cell Advocates & Activism

Hello fabulous warriors! Okay, everyone here has gotten something from the sickle cell online community in one way or another. Now here is your chance to participate and help others with knowledge the same way you have been helped. Remember, we are the only ones that can change the way

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Sickle Cell Documentary Photo Collage

Project Hemoglobin S December 17 at 1:13am Report Our Documentary needs faces!We have a collage we’re featuring in our film of Sickle Cell Survivors! If you would like to have your picture featured in our film during our collage of Sickle Cell Survivors Contact Us! We’d Love to have you!

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American Society of Hematology Conference

I know it’s probably late for anyone to travel there, but if anyone is in New Orleans…this conference just might be for you ~ by the American Society of Hematology. I thought you and Sickle Cell Can Kiss My A** readers might be interested in learning about some of the

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True Life —I Have Sickle Cell

Hey guys, MTV’s True Life is doing a story on ” I have a life altering ailment or illness.” If you are interested getting our story out there then you need to send an e-mail to seriousillness@mtvn.com. You should include your name, location, phone…etc. Let’s make sickle cell known to

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I’m a Top 100 Health Blogger

Hi Vixen, CONGRATULATIONS on your success in the People’s Health Blogger Awards Competition. Your readers have spoken, and you’ve been chosen as one of the People’s Best 100 Health Bloggers! The competition was a huge success, with hundreds of the best health bloggers competing and thousands of votes cast. The

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The Girl Effect

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People with the Trait Have Pain Too!

This is a comment from one of my readers that is 46 that has the sickle cell trait but not the disease. Some times I have unexplained pain in one of my feet, but it’s usually only when it’s cold, and after reading some of your blogs, I see that

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Sickle Cell PSA

From CT Sickle Cell Org---my favorite SCD PSA.

Join the Sickle Cell Warriors Database

Become a warrior. Sign up to be a team leader/member. Get contacted directly by SCW about events and research in your area. YOUR INFORMATION WILL NOT BE SHARED/SOLD TO ANY THIRD PARTIES. (See privacy policy)
Example SS, SC, Beta Thal, Monroe, etc.
You will receive pre-screened research opportunities on sickle cell disease
You will receive info about the sessions on the advocacy training classes
Read more here: http://sicklecellwarriors.com/classes/
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