Sickle Cell Warriors

Tag "Advocacy and Activism"

Facebook Page Group Newsletter

Hello everyone! This is an open letter to all the users of this SickleCell Warriors Facebook community and website. Learn more about us, how to join SCW, rules and regulations, posting, on the sites, and the plans that we have for SickleCell Warriors!

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    From the Heart of a Warriors’ Caregiver

From the Heart of a Warriors’ Caregiver

Tamara is an independent, strong, beautiful woman who is head over heels and happily married to her own true Sickle cell warrior. Read about her journey from a wide-eyed novice to his staunchest advocate and expert at the bedside.

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    The Greatest Advocate

The Greatest Advocate

The greatest tool that we have in the battle against sickle cell is our voice. Silence kills! If you think something is wrong, speak up! Use your voice to save a life!

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Thank You!!

  Thank you for your donation and your support in the fight to end sickle cell disease!  Your transaction has successfully completed. You should be getting a receipt via Paypal into your email within a few minutes. If you have any questions, comments, or concerns, feel free to email us

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Participate in New Research Study for Women

A study at Wayne State University is looking for African American women with sickle cell disease who are over the age of 18 to participate in a research study about their reproductive health. Women will be asked to participate in a 1 ½ – 2 hour interview and complete a

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Dealing with Medical Bills and Insurance

Medical bills and insurance often is a roadblock that plague many sickle cell warriors. Here are 4 plans that can get you out of the financial mire and on more stable ground.

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SC Research Study Needs Your Help

Participate in a new research study for daily pain diary with SC. Will last for 3 weeks. Must be between 18-35. Compensation: $90.

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On the Eve of SC Awareness Month

Tosin’s thoughts as we move forward in celebration in September, the month for sickle cell awareness in the United States.

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Please VOTE: Teen Tries to Raise Money for SCD

Vote to grant 25K from Pepsi in which a portion goes directly to sickle cell patients and their families.

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President Obama Welcomes a SC Warrior

A 14 year old sickle cell warrior got to meet the President this week. How cool is that?

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Starting a Sickle Cell Movement in Your ‘Hood

There are so many ways to get involved with sickle cell. For those of you wanting to start your own group, here are a few ideas to get you started

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How to Join Sickle Cell Trials & Studies

Have you ever wanted to enroll or participate in a research study or program involving sickle cell and didn’t know where to start?

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Sickle Cell Award

Award from AccessDNA on raising awareness for sickle cell

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Sickle Cell Advocacy & Activism

This week, I got a chance to speak with Phyllis Thomas, the founder of the SCD Soldiers Network which is an Advocacy Group for Adults with Sickle Cell Disease (AGASCA). The SCD Soldier Network enables the sickle cell community to be advocates for each other. The beautiful part of this

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Sickle Cell Advocates & Activism

Hello fabulous warriors! Okay, everyone here has gotten something from the sickle cell online community in one way or another. Now here is your chance to participate and help others with knowledge the same way you have been helped. Remember, we are the only ones that can change the way

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Announcements

Sickle Cell PSA

From CT Sickle Cell Org---my favorite SCD PSA.

Join the Sickle Cell Warriors Database

Become a warrior. Sign up to be a team leader/member. Get contacted directly by SCW about events and research in your area. YOUR INFORMATION WILL NOT BE SHARED/SOLD TO ANY THIRD PARTIES. (See privacy policy)
Example SS, SC, Beta Thal, Monroe, etc.
You will receive pre-screened research opportunities on sickle cell disease
You will receive info about the sessions on the advocacy training classes
Read more here: http://sicklecellwarriors.com/classes/
* = required field
Interested in local meetups?




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