Okay, several people have voiced concerns over me getting a crises a few days after I started taking Nicosan. I truly don’t believe that it was related or that Nicosan triggered my crises. I think that I was rundown, sick, dealing with the stress of the trip, traveling, the new job and strep throat. All
Nicosan Trial: Week One Read More »
My daughter who is 12 years old (has SS)is thinking about taking Hydroxyurea instead of getting monthly blood transfusions. If Hydroxyurea is not right for sickle cell people what other thing can they take or do if they don’t want the blood monthly? Do you know? First of all, know that I’m not a licensed
Dealing with Sickle Cell Without Using Drugs Read More »
One of the commonalities of sickle cell warriors is that fact that after a zillion hospital admissions and ER visits, eventually, our veins go into hiding from all the trauma. The medications that help us also help to scare the beejesus out of our veins as well as all those blood draws! My hands are
Now my doctors are trying to get my on Hydroxyurea like hardcore. I’m still scared about it. I know some people have used it with lots of great results, but those side effects are no joke—AND NOT BEING ABLE TO HAVE CHILDREN?? That is some crazy shit. Well, the main thing is that if you
Hydroxyurea & Infertility Read More »
I just got my replacement bottle of Arginine in the mail today. I ran out before the replacements came and although I didn’t fall sick (which I was worried might happen), I did spend the last week being really tired and exhausted. Normally I wake up at noon, chill for a couple of hours and
Energy Boost with L-Arginine Read More »
Someone left this information in a comment and I just wanted some feedback. There is a relatively new treatment for sickle cell being produced in Nigeria by an American company called Nicosan. It is based on traditional Nigerian plant based medicinal practices for the treatment of sickle cell disease. It has been tested through phase
Another Miracle Drug: Nicosan Read More »
For weeks now I’ve had a weird sleeping pattern. Generally I work late evenings from 3pm to midnight, and this is actually my dream schedule….don’t have to wake up early in the morning or fight traffic getting to work. I peak in the evenings, after 7pm or so is when I get a radical burst
What’s up fam? It’s been a week and surprisingly I’ve been well. Very well in fact. Nothing much to report…I think the L Arginine is really giving me a boost nowadays. It’s like my own personal crunk juice/spinach. Speaking of spinach, when I was younger in high school, the house mistress of my dormitory used
Norion’s dad sent me a forward a few weeks ago about L-Arginine that he had gotten from a fellow scientist researching the benefits of L-Arginine and nitric oxide to cardiovascular conditions. In addition, someone had left a comment on a previous post about L-Arginine weeks ago that was around the same time. Serendipity was pointing
The Wonder of Nitric Oxide Read More »
[blockquote style=”2″]PS 2013 update by SCW: The following is my own personal first experience with Hydroxyurea. I eventually ended up taking it for 6 months a year later, to no avail and really bad nausea/vomiting. However, Hydroxyurea does work for some people, and has to the ability to drastically reduce your pain crisis episodes, improve
Why I Don’t Take Hydroxyurea Read More »
