Posts Tagged ‘Medications and Drugs’
Register for SCDTC LiveStream
pre-register and watch the sickle cell disease therapeutics conference here live sickle cell disease awareness month warriors
Read MoreGBT Announces Updated 24-Week Efficacy Data
All Patients Enrolled in Phase 3 HOPE Study Showing Statistically Significant and Sustained Improvements in Hemoglobin with Voxelotor Global Blood Therapeutics, Inc. (GBT) today announced new results from its Phase 3 HOPE Study of voxelotor in patients ages 12 and older with sickle cell disease (SCD). The findings from 274 adolescents and adults treated with…
Read MoreRainy Lake Medical Center, International Falls, MN – Negative Review
Hello everyone, Patients all over the world struggling with sickle cell disease often go to the hospital when they are in a crisis and receive poor medical care from healthcare workers who have little to no knowledge of SCD. This has got to stop. In this section, we will be featuring real stories from sickle…
Read MoreSickle Cell and Endari
**Due to a production issue Endari is not currently available, but as soon as becomes available we will post it up on the website. Hello everyone, great news! Endari is available as of December 17. Endari is a concentrated form of L-Glutamine. Its formuls is for sickle cell disease. When taken as directed, it has…
Read MoreSickle Cell Drug Therapeutics Conference LiveStream Sept. 14, 2017
Sickle Cell Warriors has exclusively partnered with Global Blood Therapeutics (GBT) to livestream the Annual Sickle Cell Disease Therapeutics Conference. It will take place in New York City on September 14. You can view it with SCW at https://www.facebook.com/SickleCellWarriors/. This conference is the first to be entirely live streamed on our Facebook page. Through the…
Read MoreSickle Cell and Getting Prescriptions Filled
Have you ever had a doctor refuse to write you a script or a pharmacist refuse your prescription? James gives some tips on how to get your prescriptions ordered and filled, no matter what state you live in.
Read More5 Websites that You Should Know About
Explore the different resources that are just waiting for someone that needs them. Get help with your finances, medications, and medical bills.
Read MorePart 2: Paying for Medications
Sickle cell medications do not come cheap. With copays of 15-30% on prescriptions, your out of pocket costs can grow drastically. If you are on a fixed income, or don’t make much, it can get hard. Here are some resources that might be able to help.
Read MoreSickle Cell and Overcoming Addiction
This is the second part of the series, read the first part HERE. So now that we know what isn’t addiction…the next question is: what is? Once again I will rely on the combined definition of the American Pain and Addiction organizations. Addiction is a primary, chronic, neurobiologic disease with genetic, psychosocial, and environmental factors…
Read MoreSickle Cell and Drug Addiction: Definitions
Addiction is very easy to stumble into and very hard to get out of, especially when you have a chronic medical condition that requires some form of pain management therapy. We do give medical professionals alot of flack for treating us all like drug addicts; but those negative attitudes had to have come from somewhere.…
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