No More Lifespans!
Join Tosin in this video. Learn to disregard the number your doctor gave you about your lifespan. Join her in saying, “No more lifespans!”
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Living
7th Annual Sickle Cell Disease Therapeutics Conference
The 7th Sickle Cell Disease Therapeutics Conference is a meeting to find the latest news and trends in the SC world. Also, people will hear from new industry leaders, patients, physicians, CBOs and biotech companies. For more information about the day, email scdconference@gmail.com Apart from this, click here to register. Hear from the President and
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Mary: The Story of a Warrrior Wife
I’m not a warrior, but I’m a warrior wife. So I’ve spent time on the other side of your story. My story feels like it may have come from a Nigerian movie. I have known my husband for 21 years, we grew up as friends and neighbors. Everything was fine until he decided to
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Sickle Cell Patient & Family Educational Symposium
Annual Sickle Cell Disease Patient & Family Educational Symposium The Annual Sickle Cell Disease Patient & Family Educational Symposium is the only national sickle cell convention designed, created and hosted by the sickle cell patient and family community. Now in its fifth year, the meeting has grown in size and scope. Each year the meeting
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Tomorrow, June 19, is World Sickle Cell Day!
On World Sickle Cell Day, Sickle Cell Warriors Takes Action to Improve Global Health Outcomes Sickle Cell Warriors, American Society of Hematology, and other SCD partners debuts a PSA and resources library. These will help improve newborn screening and early care for children in Africa living with sickle cell disease. (Encinitas, June 19, 2018)
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SCD Adult Support Groups in Southern California
Cayenne Wellness Support Group California Warriors, great news! Cayenne Wellness is now hosting monthly support group meetings in Fresno, San Diego, Los Angles, Loma Linda, and Antelope Valley. Specifically, you get to meet others with SCD and get valuable info about improving your health. In addition, you also gain an understanding of how others cope
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Tracing sickle cell back to one child, 7,300 years ago
Tracing sickle cell back to one child, 7,300 years ago Check out this amazing article by Nalina Eggert of BBC News for a journey of SCD from 7,300 years ago. The article contains videos and text that will provide a new perspective for how SCD developed and continues to influence the lives of people who suffer
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Free and Almost Free Ebooks by April Farrell-Hasty
If you have an e-reader or an iPad or tablet, then you want to get some free ebooks! When I don’t feel well, sometimes all I do is read or study. I have always loved to read, since I was a child. Almost from the beginning, I have had an e-reader. I recently underwent surgery
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How to Travel Safely with Sickle Cell
I write this as many warriors will be traveling soon. I have traveled extensively and frequently as a yoga teacher trainer that teaches at yoga retreats in exotic destinations. Here is what I have learned. Always see your doctor before you travel. There are many reasons for this. First, you want to be certified fit
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Sickle Cell and Endari
**Due to a production issue Endari is not currently available, but as soon as becomes available we will post it up on the website. Hello everyone, great news! Endari is available as of December 17. Endari is a concentrated form of L-Glutamine. Its formuls is for sickle cell disease. When taken as directed, it has
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