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What the Pain Feels Like
This is one of my absolute favorite PSA’s about sickle cell. Elise is totally kick ass, a warrior of the highest grade and I adore her accent. Her she talks about the pain that we sickle cell warriors go through. If you want to watch the whole series, click HERE or visit http://www.curesicklecelldisease.com/
Read MoreCrises #2: What Happened
Dates: May 9-17. After spending Thursday night fighting cold and flu symptoms, Friday morning had me dealing with pain…in a major way. None of the trifecta of painkillers, (Oxycodone, Vicodin and Dilaudid) could help me, even when I majorly dosed up on the trifecta. This means that the pain was so out of control that…
Read MoreCrises #2 of 2008: The Triggers
First of all, let’s focus on the triggers: The Trip to Hawaii: I was sick on this trip but not a major crises zone. More like “I’m warding off a major crises with rest and meds, please God don’t let me get majorly sick!” I did get better towards the end of the trip though.…
Read MoreBack Again
Well, the last week has been rough to say the least. I’m going to explore the triggers of my last crises as I usually do in my next post, but this one was really, really awful. The last time I was sick, I thought it was my worst time ever…but this time, this puts everything…
Read MoreThe Patient
I think I’m officially the only vented person that took a picture as well. What a dork!
Read MoreNicosan Trial
Today is my 2nd day of being on Nicosan. One of my readers believes so much in this medication that he ordered and shipped it to me! Thank you for that…now let’s get this guinea pig in motion. So far, I haven’t had any side effects, no sickle cell pain but I haven’t really noticed…
Read MoreBack from Hawaii
Wow that was such a nice vacation. I’m going to post pics soon on both Myspace and Facebook, but once I got over the ‘sickle cell’ thing it was so fun. This didn’t happen until Thursday, day 5 of 7…grrr! That was my first day that I didn’t take any painkillers whatsover. We were in…
Read MoreMahalo!
The flight to Hawaii was really long, about 8 hours in total. I was worried that my sickle cell would flare up but it held up. The main thing is that I can’t go into the water as much as I would like to because my core body temperature drops when I’m immersed in water.…
Read MoreFlying to Hawaii
What’s good fam? I just wanted to check in before I jetsetted to Hawaii for the next week. I’ll be back by the 30th. I’m kinda nervous about the trip, mainly because I haven’t been out of the US in 8 years and also the flight is 6 hours from Cali. My last trip to…
Read MorePeople with the Trait Have Pain Too!
This is a comment from one of my readers that is 46 that has the sickle cell trait but not the disease. Some times I have unexplained pain in one of my feet, but it’s usually only when it’s cold, and after reading some of your blogs, I see that cold weather seems to trigger…
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