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Dealing with Sickle Cell Without Using Drugs
My daughter who is 12 years old (has SS)is thinking about taking Hydroxyurea instead of getting monthly blood transfusions. If Hydroxyurea is not right for sickle cell people what other thing can they take or do if they don’t want the blood monthly? Do you know? First of all, know that I’m not a licensed…
Read MoreWhat’s up!
Okay, okay, it’s been a minute. I’ve been fine sickle cell wise though. Just sorting through some other issues that have me not having that much time online like I used to. Anyway, this is a shout out to one of my sickle cell warriors, Khiana! Stay strong girl and hope you get well soon.…
Read MoreSupport Group Tonight!
Today is the sickle cell support group. I’m actually excited and looking forward to going, I feel like I’ve been waiting for them all month long. I wanna ask about the avascular necrosis and I’m supposed to take some L-Arginine over there to share with folks. It promises to be a real interesting session.
Read MoreAvascular Necrosis
I’m worried about my hips. I’ve been reading lately about avascular necrosis of the hip and the more I read about it, the more I think I have it. From what I understand, the sickling of cells causes the blocking off of tiny cappillaries, arterioles and venuoles (a sickle cell trait), which causes portions of…
Read MoreSickle Cell Support Group
Last week when I saw my hematologist, he encouraged me to be part of a support group. Norio has been pushing for me to join one for months, but I’ve always resisted. Besides the support I got from my friends, family, this blog and the online forum, I didn’t think I needed anything else. He…
Read MoreGetting Through Nursing School with Sickle Cell
Choosing nursing as a major was an easy decision for me to make. I’ve always been interested in being a nurse, especially since I noticed that when I was sick, the nurse was the one that had the most input into my well-being and care. I went straight from high school into college at Oakwood,…
Read MoreAdmitting I’m Not a Super Woman
I was at work last night, another late 12 hour nocturnal shift. Everything was going okay until around 4am when I got hit by major pains. It’s unethical to be popping pain pills when I have the lives of other people in my hands so I just gritted my teeth and tried to bear it.…
Read MoreI Have Bad Veins
One of the commonalities of sickle cell warriors is that fact that after a zillion hospital admissions and ER visits, eventually, our veins go into hiding from all the trauma. The medications that help us also help to scare the beejesus out of our veins as well as all those blood draws! My hands are…
Read MoreGoing to the ER with Sickle Cell
For some reason, the medical profession, especially in the US has a limited view of sickle cell. First of all, they think that people with the trait can’t have pain—THAT IS A MYTH! Just because they don’t have the full out disease, doesn’t mean that pain doesn’t exist in the life of a carrier too.…
Read MoreVacation Plans
Okay, it’s decided, we are going to MAUI!!! WOOHOO! I’ve never been to Hawaii so this is going to be a great one for me. The trip is planned for right after my current work contract, I can’t wait! In other news I’m doing great, not much to report on anything. My health is good,…
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