Spoken Word Spoken word is an oral art. It melds words and phrases together in beautiful patterns. Intonation and undulation punctuate these patterns in spoken word. Take a moment to hear this amazing spoken word poet. Let’s shine a light on the world of sickle cell. We hope you are as moved as we are!
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Tracing sickle cell back to one child, 7,300 years ago Check out this amazing article by Nalina Eggert of BBC News for a journey of SCD from 7,300 years ago. The article contains videos and text that will provide a new perspective for how SCD developed and continues to influence the lives of people who suffer
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5th Annual Lowcountry Sickle Cell Disease Symposium Therapeutic Options in Sickle Cell Disease Saturday, April 28, 2018 MUSC Drug Discovery Building 97 Jonathan Lucas Street Charleston, SC Conference Description Sickle Cell Disease is the most common inherited blood illness. Due to improvements in childhood care, many more patients are living into adulthood. There not enough
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**Due to a production issue Endari is not currently available, but as soon as becomes available we will post it up on the website. Hello everyone, great news! Endari is available as of December 17. Endari is a concentrated form of L-Glutamine. Its formuls is for sickle cell disease. When taken as directed, it has
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Today I want to share something with you. It’s something I rarely talk about and that very few people know about me. But, since yesterday was my 5 year anniversary, I am overwhelmed with feelings. I can’t believe where I am in my life today and want to share my happiness with you. As
Meet Henrietta: Student, Nurse, Warrior, Transplant, Sickle-Free! Read More »
Sickle Cell Disease Handbook for Patients & Families At this time, the Association of Pediatric Hematology/Oncology Nurses has developed a resource for sickle disease patients and their families. For one thing, The Sickle Cell Disease Handbook provides an overview for patients and their families on SCD. Each handbook allows parents to review it with their
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Breaking news from all around the world in #sicklecell disease. Stem Cell Transplant in sickle cell news Adult Successful stem cell transplant of 12 adults with sibling matches (half-match) at University of Illinois Hospital & Health Sciences, Chicago. Therefore, there is a 92% cure rate, 1 reversal (that patient did not follow protocol post-transplant). Great
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Official sickle cell disease ribbon is unveiled at last!
Official Sickle Cell Ribbon Read More »
Ever wanted to be in a sickle cell documentary? Well if you live in or around NY, this project may be something to look into.
New #SickleCell Documentary in NY Area Read More »
