Reserve Your Hotel Room Today for SCD Seminar! All SCD Warriors who register before August 15th are guaranteed a bed at the fabulous Courtyard by Marriott! That means , for $25 the SCD Warrior gets: A bus ride to Sacramento from one of 5 routes to the SCD Seminar To stay four nights at one […]
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GBT Announces Positive Top-line Data from Part A of the Phase 3 HOPE Study of Voxelotor in Sickle Cell Disease Primary Endpoint Achieved; 58 Percent of Patients on Voxelotor Dosed with 1500 mg at Week 12 Exceeded 1 g/dL Increase in Hemoglobin Versus 9 Percent of Placebo (p<0.0001) Company Met with FDA on June 25
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Annual Sickle Cell Disease Patient & Family Educational Symposium The Annual Sickle Cell Disease Patient & Family Educational Symposium is the only national sickle cell convention designed, created and hosted by the sickle cell patient and family community. Now in its fifth year, the meeting has grown in size and scope. Each year the meeting
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SCW INVITES YOU! The Patients, Caregivers and CBOs of the SC Community Consortium are pleased to invite you to attend the 5th Annual Sickle Cell Disease Patient & Family Educational Symposium from July 18-22, 2018 in Memphis, Tennessee! www.sicklecellconvention.com ABOUT THE SYMPOSIUM Most importantly, the SCD Patient & Family Educational Symposium (known throughout the SC community as the Warrior
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Genetic Testing for Families Affected by Genetic Recessive Disorders DNACheckup is a fairly new non-profit organization. It is geared towards providing affordable DNA testing to families of patients with previously diagnosed recessive genetic disorders. First, patients can order the tests online. Tests ship directly to the person who orders them. We work with the lab
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World Sickle Cell Day Hello Warrior Family! Don’t forget, today, Tuesday June 19th is World Sickle Cell Day. This was specially designated by the World Health Organization in 2009 to improve the education, research, and awareness of sickle cell disease on a global scale. For us warriors, it is like your sickle cell birthday!!! We have
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On World Sickle Cell Day, Sickle Cell Warriors Takes Action to Improve Global Health Outcomes Sickle Cell Warriors, American Society of Hematology, and other SCD partners debuts a PSA and resources library. These will help improve newborn screening and early care for children in Africa living with sickle cell disease. (Encinitas, June 19, 2018)
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Did you know that your #SickleCell Birthday is around the corner? SCW shares her personalized letter to friends.
It’s Your #SickleCell Birthday!!! Read More »
Public Meeting for Patient-Focused Drug Development on Chronic Pain Meeting Information On July 9, 2018, the FDA is hosting a public meeting for people with pain. Therefore, the FDA wants to hear how people deal with chronic pain, how they feel about treatment approaches, and problems they have accessing treatments. Above all, they want to
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Cayenne Wellness Support Group California Warriors, great news! Cayenne Wellness is now hosting monthly support group meetings in Fresno, San Diego, Los Angles, Loma Linda, and Antelope Valley. Specifically, you get to meet others with SCD and get valuable info about improving your health. In addition, you also gain an understanding of how others cope
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