Living with Sickle Cell Archives - Page 26 of 38

Nicosan Skeptics—I need your story!

I got a question from one of my readers that I couldn’t answer. I used to be a skeptic and require facts, figures and statistics; but I think I’m too much of a Nicosan believer to be able to answer this. My baby is also on NICOSAN. Can’t dream of taking her off it!!!! My […]

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Nicosan Tingles

Living with Sickle Cell / SC Warrior

The next few days, I’ll be posting answers and questions that I’ve been getting from my darling readers about Nicosan and Sickle cell. I seem to be getting alot of similar questions, so I figure if I post them here, more people can learn from the same group of questions. If you have any advice,

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Daily Pain Stops with Nicosan

Living with Sickle Cell / SC Warrior

I must say that I haven’t had Nicosan in about three weeks and have noticed the difference. I didn’t realize how much even the simplest pain was a part of my everyday life until Nicosan. I really hope they dont stop making this drug in my lifetime. It has really helped. ~JM SCW: I was

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Tips for Flying with Sickle Cell

1 Comment / Living with Sickle Cell / SC Warrior

So to all my darling warriors that are fretting about their first long trip in a plane…here a a few tips to keep in mind. Layovers: Do you have a layover? If not, make sure that you stretch your legs periodically to prevent leg cramps. When booking, I always recommend at least one layover for

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Shutting it Down

1 Comment / Living with Sickle Cell / SC Warrior

I know that I shouldn’t let a few empty barrels ruin the party, but some of the people that are ordering Nicosan are driving me bonkers. All I wanted was to help people, not get harassed on the regular, get scammed, or get my Paypal account in the negative because someone chose to reverse their

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Information about Nicosan

2 Comments / Living with Sickle Cell / SC Warrior

Informational Release from Xechem Nigeria. This is old, but I just came across it so I figured it would help some answer all their questions. NICOSAN™ is a non-toxic, Phyto-pharmaceutical, product for the treatment of Sickle Cell Disease (SCD). NicosanTM is obtained from the mixture of four Nigerian plant materials e.g. Piper guineese (Seeds), Pterocarpus

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Telling Your Job You Have Sickle Cell

1 Comment / Living with Sickle Cell / SC Warrior

Okay, for starters I’ve learned the hard way that it’s always good to tell your job that you have sickle cell BEFORE you end up in the hospital for a week. I used to work as a personal assistant, and it was a great job that used my organizational capabilities to the max! I fell

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The Crazy Things I Say with Narcotics

Living with Sickle Cell / SC Warrior

On the Sickle cell Ning forum, there is a great discussion about the crazy things that Sickle Cell Warriors say while they are on narcotics. Personally that hasn’t happened to me in a while, but I do remember the days of horrendous hallucinations and crazy conversations. Whoever was at my bedside at the moment bore

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Being Sick in Nigeria vs Sick in America

2 Comments / Living with Sickle Cell / SC Warrior

As a transcontinental transplant, I experienced alot of dramatic changes in how I was treated as a sickle cell patient in Nigeria vs my treatment in America. Those of you who have read the archives know that although I was born in Nigeria, I only lived there from birth to 4 years old, and then

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In the Hospital in PainCop

Living with Sickle Cell / SC Warrior

There is a great discussion over at the Ning Sickle cell board over coping when you are in the hospital in pain and doctors don’t believe your pain and ask you what your doses of pain meds are, and when you tell them, they respond “Oh that’s too high, that can’t be right, I’m only

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