Living with Sickle Cell

10th Annual SCD Educational Seminar: Integrative Medicine and Sickle Cell Disease

Living with Sickle Cell /

10th Annual SCD Educational Meeting The 10th Annual SCD Educational Meeting is a forum to discuss combining types of medicine. In addition, discussions include future trends for treating patients with sickle cell disease and trait.  So, attendees will hear information from new research and medication. Learn how to get your voice heard with government and […]

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World Sickle Cell Day 2018

1 Comment / Advocacy and Activism, Featured Warrior, Living with Sickle Cell, Newest Features, SC News and Research, Tosin’s Corner /

World Sickle Cell Day Hello Warrior Family! Don’t forget, today, Tuesday June 19th is World Sickle Cell Day. This was specially designated by the World Health Organization in 2009 to improve the education, research, and awareness of sickle cell disease on a global scale. For us warriors, it is like your sickle cell birthday!!! We have

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Tomorrow, June 19, is World Sickle Cell Day!

Advocacy and Activism, Living with Sickle Cell, SC News and Research /

  On World Sickle Cell Day, Sickle Cell Warriors Takes Action to Improve Global Health Outcomes Sickle Cell Warriors, American Society of Hematology, and other SCD partners debuts a PSA and resources library. These will help improve newborn screening and early care for children in Africa living with sickle cell disease. (Encinitas, June 19, 2018)

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Public Meeting for Patient-Focused Drug Development on Chronic Pain

Advocacy and Activism, Living with Sickle Cell, SC News and Research /

Public Meeting for Patient-Focused Drug Development on Chronic Pain Meeting Information On July 9, 2018, the FDA is hosting a public meeting for people with pain. Therefore, the FDA wants to hear how people deal with chronic pain, how they feel about treatment approaches, and problems they have accessing treatments. Above all, they want to

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SCD Adult Support Groups in Southern California

Advocacy and Activism, Living with Sickle Cell, SC News and Research /

Cayenne Wellness Support Group California Warriors, great news! Cayenne Wellness is now hosting monthly support group meetings in Fresno, San Diego, Los Angles, Loma Linda, and Antelope Valley. Specifically, you get to meet others with SCD and get valuable info about improving your health. In addition, you also gain an understanding of how others cope

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Tracing sickle cell back to one child, 7,300 years ago

Advocacy and Activism, Living with Sickle Cell, SC News and Research /

Tracing sickle cell back to one child, 7,300 years ago Check out this amazing article by Nalina Eggert of BBC News for a journey of SCD from 7,300 years ago.  The article contains videos and text that will provide a new perspective for how SCD developed and continues to influence the lives of people who suffer

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5th Annual Lowcountry Sickle Cell Disease Symposium

Advocacy and Activism, Living with Sickle Cell, SC News and Research /

5th Annual Lowcountry Sickle Cell Disease Symposium Therapeutic Options in Sickle Cell Disease Saturday, April 28, 2018 MUSC Drug Discovery Building 97 Jonathan Lucas Street Charleston, SC   Conference Description Sickle Cell Disease is the most common inherited blood illness. Due to improvements in childhood care, many more patients are living into adulthood. There not enough

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