June 19th is World Sickle Cell Day!
What are your plans to celebrate World Sickle Cell Day? I hope you have some…if not…get some!
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Advocacy and Activism
Public Meeting for Patient-Focused Drug Development on Chronic Pain
Public Meeting for Patient-Focused Drug Development on Chronic Pain Meeting Information On July 9, 2018, the FDA is hosting a public meeting for people with pain. Therefore, the FDA wants to hear how people deal with chronic pain, how they feel about treatment approaches, and problems they have accessing treatments. Above all, they want to
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SCD Adult Support Groups in Southern California
Cayenne Wellness Support Group California Warriors, great news! Cayenne Wellness is now hosting monthly support group meetings in Fresno, San Diego, Los Angles, Loma Linda, and Antelope Valley. Specifically, you get to meet others with SCD and get valuable info about improving your health. In addition, you also gain an understanding of how others cope
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Sickle Cell Spoken Word Poetry
Spoken Word Spoken word is an oral art. It melds words and phrases together in beautiful patterns. Intonation and undulation punctuate these patterns in spoken word. Take a moment to hear this amazing spoken word poet. Let’s shine a light on the world of sickle cell. We hope you are as moved as we are!
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Tracing sickle cell back to one child, 7,300 years ago
Tracing sickle cell back to one child, 7,300 years ago Check out this amazing article by Nalina Eggert of BBC News for a journey of SCD from 7,300 years ago. The article contains videos and text that will provide a new perspective for how SCD developed and continues to influence the lives of people who suffer
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5th Annual Lowcountry Sickle Cell Disease Symposium
5th Annual Lowcountry Sickle Cell Disease Symposium Therapeutic Options in Sickle Cell Disease Saturday, April 28, 2018 MUSC Drug Discovery Building 97 Jonathan Lucas Street Charleston, SC Conference Description Sickle Cell Disease is the most common inherited blood illness. Due to improvements in childhood care, many more patients are living into adulthood. There not enough
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Registration Open for Sickle Cell Patient & Family Convention 2018
Registration Hello Warrior Family, Registration is now open for the 2018 Annual Sickle Cell Patient & Family Educational Symposium. To learn more visit www.sicklecellconvention.com. In conclusion, this is the same one that we have done for the past 3 years. It will be in Los Angeles, CA from July 28-31. Above all, hope to see
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How to Travel Safely with Sickle Cell
I write this as many warriors will be traveling soon. I have traveled extensively and frequently as a yoga teacher trainer that teaches at yoga retreats in exotic destinations. Here is what I have learned. Always see your doctor before you travel. There are many reasons for this. First, you want to be certified fit
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Rainy Lake Medical Center, International Falls, MN – Negative Review
Hello everyone, Patients all over the world struggling with sickle cell disease often go to the hospital when they are in a crisis and receive poor medical care from healthcare workers who have little to no knowledge of SCD. This has got to stop. In this section, we will be featuring real stories from sickle
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Sickle Cell Disease Handbook by APHON
Sickle Cell Disease Handbook for Patients & Families At this time, the Association of Pediatric Hematology/Oncology Nurses has developed a resource for sickle disease patients and their families. For one thing, The Sickle Cell Disease Handbook provides an overview for patients and their families on SCD. Each handbook allows parents to review it with their
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