The Sickle Cell Warriors Advocacy Training & Empowerment Program (WATEP) is off the ground thanks to a grant from the GBT Foundation. We are thrilled to bring a full advocacy and training program to Warriors and caregivers! Keep an eye out for more posts on our website and social media platforms as we work to build […]
Warriors Advocacy Training & Empowerment Program (WATEP) Read More »
PRESENTED BY : As One Foundation, The Sickle Cell Community Consortium, The Chris ‘CJ’Foundation,WHATZ DA COUNT on SCT, and NSCRXPTION CO. Friday, August 19, 2022 8:45 AM – 3:30 PM (Central) Series Objectives Identify and understand the disorder of sickle cell trait along the spectrum of sickle hemoglobinopathies. Integrate risk factors of sickle cell trait
Sickle Cell Trait 360 (SCT360): Full Sickle
Hemoglobinopathy Specturm Education Read More »
5th Annual Sickle Cell Disease Access To Care Summit Friday, June 10th Healthcare Access in Sickle Cell Disease Plenary Session Curative Therapies & Gene Therapy Education Session The Patient Symposium 16th Annual Sickle Cell Disease Research and Educational Symposium Saturday, June 11th Education sessions on HealthTech, Healthcare Screening, Alternative & Adjunct Therapies Keynote Speaker Presentation
Doctor, I’ve been having pains for the past 3 weeks now and it isn’t getting any better, Regina explained as she sat restless by the doctor’s table. You see, one thing that has kept you in pain is that you’ve stressed yourself beyond what your body can carry and as a sickle cell patient, you
Mental Health: Talk to Your Doc Read More »
Gave a talk at 6TH ANNUAL LEADERSHIP SUMMIT & GENERAL ASSEMBLY OF PATIENTS, CAREGIVERS AND CBOs on Networking Event – CBO Roundup . Thanks for the great turnout! #SickleCellSummit #SickleCellSummit2022 #LeadershipSummit2022 #SickleCellConsortium2022 – via #Whova event app
6TH ANNUAL LEADERSHIP SUMMIT & GENERAL ASSEMBLY OF PATIENTS, CAREGIVERS AND CBOs Read More »
Sickle Cell Warriors, Inc. (SCW) is excited to be part of the SCCC Leadership Summit. On Wednesday, at 530pm PST, SCW will share some of our exciting new programs and initiatives during the CBO Roundup. For the first time ever, the Leadership Summit is open to the general public. This includes all SCD stakeholders! It’s not
SCCC Leadership Summit Read More »
BY SHEENA ELZIE CINCINNATI PUBLISHED 7:45 AM ET MAR. 02, 2022 MORROW, Ohio — The pandemic is bringing more attention to kids’ mental health. One teen is now trying to help through a new book she wrote. What You Need To Know Nyla Barnes, 13, authored a new self-help book to help kids cope with stress and
8th grade author writes self-help book after overcoming health battle Read More »
Did You Know: Black Midwives Most midwives, including enslaved women, drew upon traditional healing knowledge and practices passed down through generations. Throughout the years, despite efforts to marginalize them by the medical establishment, Black midwives have continued to play a critical role in delivering babies and training the next generation of Black birthworkers. This #BlackHistoryMonth
Black History Month Midwives 2022 Read More »
February is Black History Month – a time to honor the incredible contributions African-Americans have made to this country throughout its history. In celebration of this year’s official theme, Black Health and Wellness, we join #NICHQ in uplifting and building on the incredible work of Black scholars and medical practitioners in Western medicine, as well
Black History Month Celebrate 2022 Read More »
FDA will host a virtual public meeting on March 4, 2022, 9:00 am to 4:30 pm EST, to join the global observance of Rare Disease Day. The theme for FDA’s Rare Disease Day is “Sharing Experiences in Rare Diseases Together.” During the meeting, various stakeholders will share their perspectives on and experiences in rare disease product development. Please visit the public meeting page to register for the event. If you are a
Public Meeting: FDA Rare Disease Day 2022 Read More »
