Hello Sickle Cell Community Stakeholders! Get your message to a wider audience! Share news about your research, scholarship, event, gig, organization, or business! Start here! The Sickle Cell Warriors ~ League of Sponsors is looking for new partners! The League of Sponsors helps fund sickle cell-focused programs for patients and families living with sickle cell […]
On Sunday, March 10 at 7:00 p.m. ET, NIH Director Dr. Francis Collins and NIH senior investigator Dr. John Tisdale will be part of a CBS 60 Minutes segment on the search for better treatments and a cure for sickle cell disease. The segment captures Dr. Tisdale’s clinical trial at the NIH Clinical Center where he and his team are using gene therapy
SC and CBS 60 Minutes Read More »
Get the Match Livestream September 28 1 pm – 4 pm PST (8:00 pm – 11 pm GMT) There is a point in which all of us living with SCD will consider undergoing a bone marrow transplant to see if it can help our condition. Although there have been success stories, it’s important to educate
Get the Match Livestream Read More »
World Sickle Cell Day Hello Warrior Family! Don’t forget, today, Tuesday June 19th is World Sickle Cell Day. This was specially designated by the World Health Organization in 2009 to improve the education, research, and awareness of sickle cell disease on a global scale. For us warriors, it is like your sickle cell birthday!!! We have
World Sickle Cell Day 2018 Read More »
Today I want to share something with you. It’s something I rarely talk about and that very few people know about me. But, since yesterday was my 5 year anniversary, I am overwhelmed with feelings. I can’t believe where I am in my life today and want to share my happiness with you.  As
Meet Henrietta: Student, Nurse, Warrior, Transplant, Sickle-Free! Read More »
This is the finale of the interview with Raheem C, the sickle cell patient who underwent a stem cell transplant and is now sickle cell free! Congratulations Raheem! Live free and be happy!
Sickle Cell Free, Part 4: Life After Stem Cell Transplant Read More »
In Part 2; Raheem, a 33 year old patient who recently underwent stem cell transplant, talks about the stem cell donation and retrieval process…which surprisingly is not as grueling as you might think…
Sickle Cell Free, Part 2: Stem Cell Donation Read More »
It’s amazing how many myths existed in the sickle cell community regarding the stem cell transplant. Raheem tells us the hardcore truth!
Sickle Cell Free, Part 3: The Transplant Read More »
