Sickle Cell Warriors

Tag "SC News and Research"

Hydroxyurea vs Nicosan

Jay sent me a question that I think some other people might have. So we are going to do a comparative analysis on the two medications My doctor recently put me on Hydroxyurea. I was hesitant taking it because of the long term side effect of leukemia, but in the

21 comments Read Full Article

Stop Delays in Treatment of Sickle Cell Patients

This article is from the medical journal ED Nursing printed July 1st, 2007. I’m putting it on here so that more medical professionals can see that it’s not wrong to treat sickle cell patients properly. The most pertinent parts for me will be in bold. Hola at Dr. Tanabe for

0 comment Read Full Article

Sickle Cell Clinical Trials

I got this from Our Voice, a new sickle cell blog that just launched in the blogosphere. Go over there and say hi! According to the Washington Post, May 29,2008, Johns Hopkins Instituteresearchers developed a human stem cell line containing the mutation associatedwith sickle cell anemia. They say, “One challenge

0 comment Read Full Article

Re: Sickle Cell Drug Addicts

My, my, my that was a hot topic. I didn’t even know that many people read the blog. I would like to thank Anon RN and Anon Parent for stepping up to the plate and bringing this up. Personally I hate it when people assume that just because we are

0 comment Read Full Article

Nicosan Trial

Today is my 2nd day of being on Nicosan. One of my readers believes so much in this medication that he ordered and shipped it to me! Thank you for that…now let’s get this guinea pig in motion. So far, I haven’t had any side effects, no sickle cell pain

0 comment Read Full Article

People with the Trait Have Pain Too!

This is a comment from one of my readers that is 46 that has the sickle cell trait but not the disease. Some times I have unexplained pain in one of my feet, but it’s usually only when it’s cold, and after reading some of your blogs, I see that

2 comments Read Full Article

Hydroxyurea & Infertility

Now my doctors are trying to get my on Hydroxyurea like hardcore. I’m still scared about it. I know some people have used it with lots of great results, but those side effects are no joke—AND NOT BEING ABLE TO HAVE CHILDREN?? That is some crazy shit. Well, the main

13 comments Read Full Article

Another Miracle Drug: Nicosan

Someone left this information in a comment and I just wanted some feedback. There is a relatively new treatment for sickle cell being produced in Nigeria by an American company called Nicosan. It is based on traditional Nigerian plant based medicinal practices for the treatment of sickle cell disease. It

0 comment Read Full Article

New Sickle Cell Research Findings

Whoa, check this out…guess we aren’t as alone as I originally thought. Seriously though…a VIRUS?? It sounds waaaaay X-men-ish for me but at the same time, it just might work.

2 comments Read Full Article

The Wonder of Nitric Oxide

Norion’s dad sent me a forward a few weeks ago about L-Arginine that he had gotten from a fellow scientist researching the benefits of L-Arginine and nitric oxide to cardiovascular conditions. In addition, someone had left a comment on a previous post about L-Arginine weeks ago that was around the

0 comment Read Full Article

The New Sickle Cell PSA

One of my friends sent this PSA to me about Sickle Cell. I wanna know why my fine face wasn’t there…lol.

0 comment Read Full Article

September is Sickle Cell Awareness Month

I recently got this in my Myspace box and I’m passing it on to all the Sickle Cell Warriors out there. We are asking everyone to help raise public awareness of this deadly genetic disorder. PLEASE put SICKLE CELL, You Have No Idea! in your top friends. http://www.myspace.com/sicklecellawareness1 While sickle

0 comment Read Full Article

Donate

Support awareness & education for SCD

Announcements

Sickle Cell PSA

From CT Sickle Cell Org---my favorite SCD PSA.

Join the Sickle Cell Warriors Database

Become a warrior. Sign up to be a team leader/member. Get contacted directly by SCW about events and research in your area. YOUR INFORMATION WILL NOT BE SHARED/SOLD TO ANY THIRD PARTIES. (See privacy policy)
Example SS, SC, Beta Thal, Monroe, etc.
You will receive pre-screened research opportunities on sickle cell disease
You will receive info about the sessions on the advocacy training classes
Read more here: http://sicklecellwarriors.com/classes/
* = required field
Interested in local meetups?




powered by MailChimp!

Join us on Facebook!

Archives

Tweets!

have data = false

This is a demo store for testing purposes — no orders shall be fulfilled. Dismiss