Sickle Cell Warriors

Tag "SC News and Research"

SickleSpace

Oh my goodness, i just was sent a link to the most interactive sickle cell forum on the web! It was started by an obviously tech savvy and funny fam. You can upload blogs, pix, links, videos and just pretty much everything else like you could on Myspace/Facebook and other

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New Adult SCD Study

The Adult Sickle Cell Quality of Life Measurement Information System(ASCQ-Me) Project is creating a tool to help doctors and researchersacross the U.S. better understand what it’s like for adults livingwith sickle cell disease. By understanding how sickle cell affects a person’s daily life –like how it affects sleeping, eating, being

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Other Treatment

For those of you unable to get Nicosan or unwilling to join in the wonders of Nicosan, one of my readers, Charles, was kind enough to put together a list of other remedies that have been shown to alleviate sickle cell crises and pain. (Not cure—but alleviate!) I haven’t tried

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Potential Cure for Children with Sickle Cell Disease Evaluated in Nationwide Research Study

There is a study underway on bone marrow transplants in children that you or your child/niece/nephew/grandchild…etc. might be eligible for.The NMDP and other organizations are working together on a clinical trial for children (ages 3-16) with SCD. A study like this has never been done before and it aims to

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Hydroxyurea vs Nicosan

Jay sent me a question that I think some other people might have. So we are going to do a comparative analysis on the two medications My doctor recently put me on Hydroxyurea. I was hesitant taking it because of the long term side effect of leukemia, but in the

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Stop Delays in Treatment of Sickle Cell Patients

This article is from the medical journal ED Nursing printed July 1st, 2007. I’m putting it on here so that more medical professionals can see that it’s not wrong to treat sickle cell patients properly. The most pertinent parts for me will be in bold. Hola at Dr. Tanabe for

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Sickle Cell Clinical Trials

I got this from Our Voice, a new sickle cell blog that just launched in the blogosphere. Go over there and say hi! According to the Washington Post, May 29,2008, Johns Hopkins Instituteresearchers developed a human stem cell line containing the mutation associatedwith sickle cell anemia. They say, “One challenge

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Re: Sickle Cell Drug Addicts

My, my, my that was a hot topic. I didn’t even know that many people read the blog. I would like to thank Anon RN and Anon Parent for stepping up to the plate and bringing this up. Personally I hate it when people assume that just because we are

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Nicosan Trial

Today is my 2nd day of being on Nicosan. One of my readers believes so much in this medication that he ordered and shipped it to me! Thank you for that…now let’s get this guinea pig in motion. So far, I haven’t had any side effects, no sickle cell pain

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People with the Trait Have Pain Too!

This is a comment from one of my readers that is 46 that has the sickle cell trait but not the disease. Some times I have unexplained pain in one of my feet, but it’s usually only when it’s cold, and after reading some of your blogs, I see that

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Hydroxyurea & Infertility

Now my doctors are trying to get my on Hydroxyurea like hardcore. I’m still scared about it. I know some people have used it with lots of great results, but those side effects are no joke—AND NOT BEING ABLE TO HAVE CHILDREN?? That is some crazy shit. Well, the main

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Another Miracle Drug: Nicosan

Someone left this information in a comment and I just wanted some feedback. There is a relatively new treatment for sickle cell being produced in Nigeria by an American company called Nicosan. It is based on traditional Nigerian plant based medicinal practices for the treatment of sickle cell disease. It

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New Sickle Cell Research Findings

Whoa, check this out…guess we aren’t as alone as I originally thought. Seriously though…a VIRUS?? It sounds waaaaay X-men-ish for me but at the same time, it just might work.

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The Wonder of Nitric Oxide

Norion’s dad sent me a forward a few weeks ago about L-Arginine that he had gotten from a fellow scientist researching the benefits of L-Arginine and nitric oxide to cardiovascular conditions. In addition, someone had left a comment on a previous post about L-Arginine weeks ago that was around the

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The New Sickle Cell PSA

One of my friends sent this PSA to me about Sickle Cell. I wanna know why my fine face wasn’t there…lol.

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From CT Sickle Cell Org---my favorite SCD PSA.

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