Sickle Cell Warriors

Articles

 Breaking News
  • VOICE Crisis Alert App VOICE Crisis Alert App The VOICE Crisis Alert app is the first national app created for patients and families with sickle cell disease. The app stores all its data locally...
  • World Sickle Cell Day 2018 Hello Warrior Family! Don’t forget, today, Tuesday June 19th is World Sickle Cell Day. This was specially designated by the World Health Organization in 2009 to improve the education, research, and...
  • SCD Adult Support Groups in Southern California California Warriors, great news! Cayenne Wellness is now hosting monthly support group meetings in Fresno, San Diego, Los Angles, Loma Linda, and Antelope Valley. You get to meet others with...
  • Tracing sickle cell back to one child, 7,300 years ago Tracing sickle cell back to one child, 7,300 years ago Check out this amazing article by Nalina Eggert of BBC News for a journey of SCD from 7,300 years ago.  The...
  • Meet Brittany: Caregiver, poet, and writer This week’s warrior in the spotlight is Brittany Hightower.  Brittany is a caregiver who is beautiful, intelligent, and passionate about poetry. And oh yeah, she has sickle cell. How old...

First Quarter Update from SCW, Inc.

First Quarter Update from SCW, Inc.

Remember at the beginning of the year when Lakiea and I promised that this year was going to be EPIC and so different from every other year of SCW?

We’ve been working hard to make that happen. We are only 3 months in, and we’ve already stepped it up with the monthly challenges, January Chicago Meetup, February Washington D.C. Meetup, March PEER Initiative, Advocacy training, Live tweeting Advocacy day & FDA Meeting, the International Day of Prayer (April), Mentorship training (May), Major Secret Initiative (June)–shhhh!, and the Warriors Annual Gathering in July.  And that is just in the first few months. Our goal is to have an initiative every single month (except September..lol).

Thank you to our amazing group of volunteers, writers, advocates, and ambassadors that toil alongside us to keep the ship afloat. It truly does take a village! A warm thank you to Mia, Jennifer, Tamara, James B, James G., Nina, Louisetta, Rachelle, Brenda, Connella, Tamika, Grace, Busayo, and LBonee. It’s so true that little drops of water make a mighty ocean. We couldn’t do any of this without your help and dedication!

Besides working on the Annual Gathering in Atlanta in July, we are planning another MAJOR initiative for June 19th, that will be launching soon. Stay tuned, this year is truly going to be a Year of Achievement for SCW, and we are so glad that you are here with us. Our goal is to keep fighting, connecting, and advocating until sickle cell is eradicated and there is a cure for everyone. We can only do it with your help (and God’s blessings).

We hope to see you at the Warriors Annual Retreat & Educational Symposium July 17-20 in Atlanta, GA. To learn more visit http://sicklecellwarriors.com/july-2014-warriors-annual-gathering-educational-symposium/ and to register go to http://sicklecellwarriors.com/event-registration/

The Early bird rate is significantly cheaper, so make sure you sign up for the database, register early, and reserve your spot  by Pre-Registering for $25.00.

See you in Atlanta in July!

As you can see, we have our hands full, so if you are inclined to volunteer, advocate, support us, encourage us, or donate, please do so!

 

 

Tags
Share

About Author

Sickle Cell Warrior

Sickle Cell Warrior

Tosin is dedicated to perpetuating healthy and positive messages about sickle cell. Although sickle cell is a subject often taboo in the communities this condition is most prevalent, Tosin's message is that sickle cell is not something to be ashamed of and you can live a rich and fulfilling life with sickle cell. Sickle cell warriors are the most amazing people in the world, with a great fortitude for compassion, willpower and strength.

Related Articles

1 Comment

  1. Ellen
    Ellen April 06, 09:11

    Great article! Writing for sicklecellwarriors.com has added so much joy to my life! I thank you for letting me be that parental voice for those caring for little warriors! I love to encourage God’s people and you’ve given me that opportunity as well as to share my struggles/successes in caring for my little warrior!

Write a Comment

This site uses Akismet to reduce spam. Learn how your comment data is processed.

Donate

Support awareness & education for SCD

WordPress › Error

Error! Donation amount must be a numeric value.