Sickle Cell Warriors

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So September is Sickle Cell Awareness Month…I’m sure many of you already know. I’ve been out of the SSA loop for a minute but so many of my readers are

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PPH Sickle Cell Drug Trial Stopped

NIH stops trial of drug for sickle cell patientsJuly 28, 2009 | 10:46 am The National Institutes of Health has halted a clinical trial using sildenafil to treat pulmonary hypertension

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Speak Up!

A friend on the Ning Sickle Cell forum is working with doctors at Johns Hopkins to develop training for medical students on sickle cell treatment & care. They want to

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Mayo Clinic on Nicosan

Nicosan is referenced on the Mayo Clinic website. We’re moving on up! Check it on the end here

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Sickle Cell costs $$$

A new study shows that the annual cost of medical care in the US forpeople who suffer from sickle cell disease exceeds $1.1 billion. Check out the full article HERE.

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Global Sickle Cell Awareness Day

The United Nations and the World Health Organization has declared June 19th World Sickle Cell Awareness Day!! We have our own day y’all. Congratulations! Right now there is a huge

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World Sickle Cell Fest in NY!

World Sickle Cell Day Festival is June 19!!!—that’s tomorrow! Date: Friday, June 19th, 2009Time: 10:00AM to 6:00PMPlace: Dag Hammarskjold Plaza47th

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Nicosan Woes

Hello everyone, I’ve been digress in mentioning a few snags that have hit Nicosan. I’ve gotten several emails over the

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Sickle Cell & President Obama

My sister sent this to me from a friend of a friend. Guess Sickle Cell is in the eye of

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Bone Marrow Transplant + Chemo is the new Cure

Hey everyone. I just got this link on some research conducted at John Hopkins University related to sickle cell. The

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Research Study

This is not my research, therefore I do not have additional information about this project. It is being conducted by

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Nicosan Research Study

Hey everyone, I’m seriously trying to set up a study dealing with Nicosan. The question in my last post has

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Announcements, Announcements, Announcements!

Hey everyone, If you have gotten your Nicosan shipment and would like to take part in a study regarding that

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I got an A!

Hey, I just got my grades for this last semester. I rocked out y’all! My GPA is 3.9 and I’m

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SickleSpace

Oh my goodness, i just was sent a link to the most interactive sickle cell forum on the web! It was started by an obviously tech savvy and funny fam.

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From CT Sickle Cell Org---my favorite SCD PSA.

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