Advocacy and Activism

This section focuses on news in advocacy and activism for sickle cell disease. Get the latest on actionable legislative actions, state advocacy efforts, local, national, and global campaigns to improve care and the lives of those with SCD. We need your voice. Get involved, sign a petition, use your network, call your house representatives and senators, share your story, and make an impact.

April Sickle Cell Warriors International Day of Prayer & Meditation for...

It's been a long time coming, but here is our first international challenge that focuses how we can change the world---together.

First Quarter Update from SCW, Inc.

Remember at the beginning of the year when Lakiea and I promised that this year was going to be EPIC and so different from...

Warriors, Please Act Now! #SickleCellTA Social Media Takeover to Support our...

We received this message for Advocacy day. Although you are not in Washington DC, you can still help today. Leave a Facebook message, tweet,...

Organization in the Spotlight: Have A Heart for Sickle Cell Anemia...

This week’s organization in the spotlight is the Have A Heart for Sickle Anemia Foundation. Established in 1990 by the late Linda Collins...

Tell the FDA

The FDA meeting is coming up on February 7, 2014 in Silver Springs, MD. Sickle cell advocates, patients, families, and members of the health...

Why is the FDA Meeting on Sickle Cell Important?

I just turned in my answers to the FDA questions. A member of the SCW Facebook page said this, "What is the big deal...

Tell Your Son!

Its important to educate our sons on trait awareness, and not just our daughters.

Expert Patient Series Register HERE!

Registration for the Expert Patient classes is now open.

Organization in the Spotlight: Baton Rouge Sickle Cell Anemia Foundation

Learn more about the Baton Rouge Sickle Cell Anemia Foundation, and reach out to them or the sickle cell organization in your neighborhood to see how you can help!

Advocacy Training

Brief synopsis of the Advocacy Training class. Get ready to fire up your activism, get involved, and take sickle cell awareness to the next level.
- Advertisement -
ads-img

MOST POPULAR