Advocacy and Activism

This section focuses on news in advocacy and activism for sickle cell disease. Get the latest on actionable legislative actions, state advocacy efforts, local, national, and global campaigns to improve care and the lives of those with SCD. We need your voice. Get involved, sign a petition, use your network, call your house representatives and senators, share your story, and make an impact.

Organization in the Spotlight: Have A Heart for Sickle Cell Anemia...

This week’s organization in the spotlight is the Have A Heart for Sickle Anemia Foundation. Established in 1990 by the late Linda Collins...

Tell the FDA

The FDA meeting is coming up on February 7, 2014 in Silver Springs, MD. Sickle cell advocates, patients, families, and members of the health...

Why is the FDA Meeting on Sickle Cell Important?

I just turned in my answers to the FDA questions. A member of the SCW Facebook page said this, "What is the big deal...

Tell Your Son!

Its important to educate our sons on trait awareness, and not just our daughters.

Expert Patient Series Register HERE!

Registration for the Expert Patient classes is now open.

Organization in the Spotlight: Baton Rouge Sickle Cell Anemia Foundation

Learn more about the Baton Rouge Sickle Cell Anemia Foundation, and reach out to them or the sickle cell organization in your neighborhood to see how you can help!

Advocacy Training

Brief synopsis of the Advocacy Training class. Get ready to fire up your activism, get involved, and take sickle cell awareness to the next level.

How to Help those Affected by Sickle Cell Disease

Friends, partners, and family with a sickle cell warrior often wonder, what can they do to help? Here are a few tips to set you on the right path.

Year of Achievement

Dr. Bailey expounds on the strides that SCW has completed this year, and plans for next year.

Are You a Victim or Warrior?

It's so easy to sit back, complain, and expect things to change, but if we are not a part of the change, solution, and activism; then we are a part of the problem. Tamera eloquently addresses several issues plaguing the sickle cell community.
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