This week was a sad week for my family because after twenty years, I have decided to transfer to another hospital for the medical care for my 8 year old Sickle Cell warrior. Knowing that everyone on your child’s medical team has your family’s best interest is one of the greatest components. However, when you […]
Who’s Really On Your Sickle Cell Team? Read More »
As parents of warriors, we must always be alert when managing our babies’ Sickle Cell disease. Recently, I had another eye-opening experience while dealing with doctors after my warrior temporarily lost her vision twice. The doctors immediately admitted her and gave her a blood transfusion. Next, they ran all kinds of tests and did a
Don’t Be Bullied by Doctors! Read More »
What happens when your newborn has sickle cell? Most people are excited to bring a bundle of joy into the world. As a mom, you love them from the moment you feel that first burst of life moving in your belly. But what happens when the doctors tell you your baby may or may not
So My Newborn Has Sickle Cell…What Now? Read More »
To all the Warrior Moms, Dads, Lovers, Sisters, Brothers, Husbands, Wives, Children & Caregivers. This beautiful ode is for you. Thank you for being our angels. You are Beautiful Have you seen the angel in your world. She is a beauty to behold! Her wings were brilliant but fragile. when she tries to flaps, the
Beautiful Ode to the Caregiver Read More »
Picky Eaters As most parents know, many children can be picky eaters. Getting kids to eat their fruits and vegetables has challenged parents for many decades. Especially for those youngsters diagnosed with SCD (Sickle Cell Disease), it is often associated with low calcium intake, vitamin D deficiency and a poor appetite, which can lead to
Picky Eaters: Getting A SC Child to Eat Healthy Read More »
Sickle Cell has had a major negative effect in my finances for the last 6 years. Many people don’t pay attention to this struggle and how doing it as a single parent makes it almost impossible. Be straight with yourself and assess where your faith is right now. Remind yourself of all the past struggles
Has SC Hit Your Finances? Read More »
Know Who You Are! Greeting to All, it’s been a minute, my SC parents! My warrior has been continuously sick since my last article posting and hence my writing had slowed! But God has blessed me with my second wind and inspired me to write for all my SC parents in the struggle daily. So
Being the parents of a Sickle Cell Warrior (SCW), we know giving up is never an option. Even when we don’t receive the needed support to get through each crisis, we can never lose hope or our smile. Your child survives merely through the pain from your strength/smile. But who holds you up when exhaustion
Sickle Cell Families Need Direct Support Services Read More »
In today’s society, almost no one will understand you position in caring for your little warrior. When you feel your job title changes to “Problem Employee/Always Absent Employee” then it’s time to make a plan for you to exit stage left. God has placed in us all gifts and talents needed to provide an income
Warrior Parents: Know When It’s Time to Go! Read More »
ElleJanae explains how to work together with school administrators and the teacher to get your 504B plan instituted and executed for your child.
Schools & Parents Can Work Together Read More »
