Community Engagement Workshop – Oakland

Join us on August 10, 2019 as the ASH Research Collaborative (ASH RC) with CISCRP, the organization’s community engagement partner, conducts the ASH RC Sickle Cell Disease Clinical Trials Network (CTN) Community Engagement Workshop in Oakland, CA! Why? To be a part of a new plan to create treatments that are important to the sickle…

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WORLD SICKLE CELL DAY 2019!

Happy World Sickle Cell Day! Your story matters! I hope you are sharing your story today in some way…after all, it’s your sickle cell birthday! In honor of today, SCW is proud to announce the start of The Unbreakable Warrior Project, a coffee book with esteemed photojournalist Heather Avant! Show off your warrior scars and…

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FREE Webinar: Hydroxyurea for SCD

June 25, 2019 6:00 – 7:00 p.m. Eastern time This webinar will provide information on hydroxyurea, share a story from an individual who has taken hydroxyurea, and feature sickle cell disease experts who will answer questions the audience may have. The webinar will focus on the use of hydroxyurea in young adults and adults. Register…

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6th Annual Sickle Cell Patient & Family Educational Symposium

July 24 – 28, 2019 Plano, TX The Annual Sickle Cell Disease Patient & Family Educational Symposium is the only national sickle cell convention designed, created, and hosted by the sickle cell patient and family community.  Each year the meeting is hosted by a partnership of sickle cell community-based organizations, patients, and advisors. We are…

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Webinar “What’s New at SCDAA”

SCDC Sickle Cell Data Collection program Register for Webinar “What’s New at SCDAA” Wednesday, April 24, 2019 10:00 AM – 11:30 PM PST Register now:  https://attendee.gotowebinar.com/register/1778776015181580301     Presented by Ms. Beverley Francis-Gibson, SCDAA President and CEO, and Dr. Biree Andemariam, SCDAA Chief Medical Officer. Tracking California’s Sickle Cell Data Collection for California program invites you to attend a webinar, “What’s New at the…

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SCD Clinical Trials Network Workshops

ASH Research Collaborative Hosts SCD Community Engagement Workshops Join the ASH Research Collaborative for a series of fun and engaging Sickle Cell Disease Community Engagement Workshops this spring and summer, throughout the country for individuals living with sickle cell disease and their parents/guardians. The first workshop takes place April 13, 2019 in Chicago, IL! If…

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FDA Public Meeting – Patient Perspectives on the Impact of Rare Diseases

Registration Open: FDA Public Meeting – Patient Perspectives on the Impact of Rare Diseases: Bridging the Commonalities On Rare Disease Day, FDA announced the Agency will host a public meeting – “Patient Perspectives on the Impact of Rare Diseases: Bridging the Commonalities” on April 29, 2019. The purpose of the meeting is to obtain patients’ and caregivers’ perspectives on the impacts…

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Holistic Health and Sickle Cell Disease Webinar

Holistic Health and Sickle Cell Disease: A focus on Mental and Behavioral Health Thursday, February 28, 2019 1:00 – 2:15 pm EST Register Here Sickle cell disease (SCD) affects millions globally, disproportionately impacting certain racial and ethnic minority populations, including African Americans, Latinos and people of Middle Eastern, Indian, Asian and Mediterranean descent. According to…

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7th Annual Sickle Cell Disease Therapeutics Conference

The 7th Sickle Cell Disease Therapeutics Conference is a meeting to find the latest news and trends in the SC world. Also, people will hear from new industry leaders, patients, physicians, CBOs and biotech companies. For more information about the day, email scdconference@gmail.com Apart from this, click here to register. Hear from the President and…

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SCD Seminar & Hotel Registration 2018

Reserve Your Hotel Room Today for SCD Seminar! All SCD Warriors who register before August 15th are guaranteed a bed at the fabulous Courtyard by Marriott! That means , for $25 the SCD Warrior gets: A bus ride to Sacramento from one of 5 routes to the SCD Seminar To stay four nights at one…

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