Join us on August 10, 2019 as the ASH Research Collaborative (ASH RC) with CISCRP, the organization’s community engagement partner, conducts the ASH RC Sickle Cell Disease Clinical Trials Network (CTN) Community Engagement Workshop in Oakland, CA! Why? To be a part of a new plan to create treatments that are important to the sickle […]
Community Engagement Workshop – Oakland Read More »
Happy World Sickle Cell Day! Your story matters! I hope you are sharing your story today in some way…after all, it’s your sickle cell birthday! In honor of today, SCW is proud to announce the start of The Unbreakable Warrior Project, a coffee book with esteemed photojournalist Heather Avant! Show off your warrior scars and
WORLD SICKLE CELL DAY 2019! Read More »
June 25, 2019 6:00 – 7:00 p.m. Eastern time This webinar will provide information on hydroxyurea, share a story from an individual who has taken hydroxyurea, and feature sickle cell disease experts who will answer questions the audience may have. The webinar will focus on the use of hydroxyurea in young adults and adults. Register
FREE Webinar: Hydroxyurea for SCD Read More »
July 24 – 28, 2019 Plano, TX The Annual Sickle Cell Disease Patient & Family Educational Symposium is the only national sickle cell convention designed, created, and hosted by the sickle cell patient and family community. Each year the meeting is hosted by a partnership of sickle cell community-based organizations, patients, and advisors. We are
6th Annual Sickle Cell Patient & Family Educational Symposium Read More »
SCDC Sickle Cell Data Collection program Register for Webinar “What’s New at SCDAA” Wednesday, April 24, 2019 10:00 AM – 11:30 PM PST Register now: https://attendee.gotowebinar.com/register/1778776015181580301 Presented by Ms. Beverley Francis-Gibson, SCDAA President and CEO, and Dr. Biree Andemariam, SCDAA Chief Medical Officer. Tracking California’s Sickle Cell Data Collection for California program invites you to attend a webinar, “What’s New at the
Webinar “What’s New at SCDAA” Read More »
ASH Research Collaborative Hosts SCD Community Engagement Workshops Join the ASH Research Collaborative for a series of fun and engaging Sickle Cell Disease Community Engagement Workshops this spring and summer, throughout the country for individuals living with sickle cell disease and their parents/guardians. The first workshop takes place April 13, 2019 in Chicago, IL! If
SCD Clinical Trials Network Workshops Read More »
Registration Open: FDA Public Meeting – Patient Perspectives on the Impact of Rare Diseases: Bridging the Commonalities On Rare Disease Day, FDA announced the Agency will host a public meeting – “Patient Perspectives on the Impact of Rare Diseases: Bridging the Commonalities” on April 29, 2019. The purpose of the meeting is to obtain patients’ and caregivers’ perspectives on the impacts
FDA Public Meeting – Patient Perspectives on the Impact of Rare Diseases Read More »
Holistic Health and Sickle Cell Disease: A focus on Mental and Behavioral Health Thursday, February 28, 2019 1:00 – 2:15 pm EST Register Here Sickle cell disease (SCD) affects millions globally, disproportionately impacting certain racial and ethnic minority populations, including African Americans, Latinos and people of Middle Eastern, Indian, Asian and Mediterranean descent. According to
Holistic Health and Sickle Cell Disease Webinar Read More »
The 7th Sickle Cell Disease Therapeutics Conference is a meeting to find the latest news and trends in the SC world. Also, people will hear from new industry leaders, patients, physicians, CBOs and biotech companies. For more information about the day, email scdconference@gmail.com Apart from this, click here to register. Hear from the President and
7th Annual Sickle Cell Disease Therapeutics Conference Read More »
Reserve Your Hotel Room Today for SCD Seminar! All SCD Warriors who register before August 15th are guaranteed a bed at the fabulous Courtyard by Marriott! That means , for $25 the SCD Warrior gets: A bus ride to Sacramento from one of 5 routes to the SCD Seminar To stay four nights at one
SCD Seminar & Hotel Registration 2018 Read More »
