Question: G. Jones says, “What can we do to stop mistreatment of SCD patents in Hospital and being lable as Drug seekers. Like our pain is not real. But, we are not just looking for Dugs. Why wood anyone get out their bed and go to hospital at 3am, if their pain wasn’t real. First, Methodist Hospital in Indianapolis Indiana is really bad with treatment of SC patents. If you say your hurting, why not believe you. If I say I think Im having a heart attack you wouldnt doubt it.”
Answer: G is right. We need to stop accepting being treated like crap in the Emergency Department is acceptable. Because it is not. I think every time something happens to us, we need to file a report. We need to let administration know. Most of these cases go under reported or people don’t follow through and so the hospital has no incentive to change anything. If we keep all the reporting to the hospital admins, governmental agencies, regulating bodies, licensure bodies, heck even Medicare. They would be forced to comply with providing quality consistent medical care to all sickle cell patients. However, we need to do it as a cohesive force. If 20,000 patients on here wrote into JCHACHO? Or into the Emergency Academy of Physicians? After that, change would be forced to happen. Staying silent and complacent is the problem.
We must be resistant..
In response to the article listed above by G. Jones. I agree 199%. Question is…maybe someone can answer…How do we go about filing a complaint in large numbers to make an impact. I too use to be ashamed to share w/ my job or even talk about my condition but now I’m ready to tell the world if it will get us SC Warriors better and faster care. What has been done already and what can we do moving forward?
As a healthcare provider… once our ED became dilaudid free we have seen an exponential drop in the sickle cell visits and admissions.
Maybe because I have seen people lie to me about having Sickle cell. 10/10 pain with normal vital signs. Only come to ER. Prior to being dialysis free we would see people who would come every few days. The fact that I rarely see them follow up with their Heme specialists. All the allergies to morphine, Toradol, and only “dilaudid” or that drug that starts with a D. Please. People are intellectually dishonest if you don’t admit there is a lot of drug seeking behavior overlap with this population.
All the local hospital systems being on the same system has cut down on the abuse.
How do they treat all the sickle cell disease in Africa? Hint: not with Narcotics.
I have sickle cell trait and have been to the hospital which is not fun due to a lot of pain. I have crisis and this is serious. I pray to God to heal all the people that have sickle cell trait anemia. I have the trait and my daughter has the anemia and my father has the disease also as well as my two granddaughters have the trait.