Ague

Hey peoples! The good news is that I’m still not sick. The bad news is that it’s been 3 months already. My intuition is silently ticking that there is a crises coming around the corner give or take 3-4 weeks. The thing about this is that although sometimes a crises catches me totally unawares, for…

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Sex With Sickle Cell

I’m a very sexual person, so this has been one of the harder things to deal with about sickle cell. It sucks that when you are in the throes of a passionate encounter, you have a greater chance of getting and L2 or higher or even get thrown into a full blown out crises. Here’s…

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Transmission of Sickle Cell

Okay, this is for all the ignorant peeps out there. No offense, but why the fuck do you think that you can get sickle cell from your boyfriend/girlfriend? It’s not an STD, it’s not contagious—it’s an inherited disease. Inherited! This means that if your parents weren’t on the ball with getting their HbS screening done…

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Celebration

My ticker officially hit the 3 month mark. Go Me! If I were to look at the glass half full, that means I’ve been well with no major sickle cell crises’ for 3 months. If I were to look at the glass half empty, that means that another crises is around the corner. Okay, I’m…

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Working Where I Was Sick

Yesterday I worked with a nursing agency. I got floated to the unit where I was sick in December! It was weirdly uncomfortable as you can imagine. The first nurse I ran into said, “Your face is so familiar,” and as soon as I said my name she exclaimed, “Yeah, you were a patient here…

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Diary of a Crises

I wrote this years ago, what was going through my mind when a crises hit me. It’s kinda long, but really loopy. It’s also really convoluted, I wrote this under the influence, I’ve tried editing but even I can’t decipher the craziness that is the talk between my brain, my body and my spirit. Tuesday…

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Pain Scale

Living with sickle cell means living with chronic and acute pain. I have pain every single day of my life…sometimes it’s worse than others, and sometimes it’s just minor twinges that I can will away. I actually have a very high pain thresh-hold, I go for as long as possible without taking pain meds because…

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Jaundice

I was looking at some pictures I took last week and man, I look so jaundiced. Ick! For those of you that don’t know, jaundice is a condition caused from the increased production of bile pigments in the blood. It usually affects people with all kinds of liver diseases but it affects Sickle Cell Warriors…

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Schmoozers

Sickle Cell Warriors Inc.

I got my first blogger award for this blog. The Real Life Drama Queen has given me the Schmoozer Award for being a blog that rocks:) Here is what she said: You all know and love her as the writer of The Bad Girls Guide. But what not everyone knows is that she has another…

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Mr. Wonderful

On my other blogs, he’s known either as Norio or the Fiance, so in case I start inter changing them, it’s actually the same person. Today is his 30th birthday and I’m up because I’m so excited to enact all the BIG PLANS I have for it. We met online (yes to the skeptics, online…

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